The slow and steady loss of independence that can happen when you have a disability or health issue can be quite pernicious, quietly gnawing into the roots of your confidence until its too late to undo. Exploring ways that we get to feel independent in spite of other limitations and how important it is to preserve them.
Middle of the night thinking-aloud about the links between insomnia, autism, oxalates, vulvodynia and interstitial cystitis, chronic pain, environmental sensitivities, low to borderline thiamine B1 levels and feeling like you want to jump out of your skin!
Exploring some of the links I have personally made between low barometric pressure and increased pain (also ADHD, intensity and sensitivity). Considering a non-linear approach to all of these areas (how linear are your symptoms, really), do changes in air pressure play a part?
In Ehlers Danlos, muscle spasm and rigidity is a compensatory measure for hypermobility, to stabilise the joint. As such, it stems from a different cause to what is typical (not tightness as for most people but a response from the central and peripheral nervous system) and thus requires a different approach, but what? Exploring the possibilities via therapy and listening to your own body as a primary approach.
Its just so interesting to try-on the all-too-familiar chronic health "flare-up" scenario through the eyes of Sensory Defensive Disorder rather than through the more blinkered perspectives of a particular conditions such as fibromyalgia, hypermobility or chronic fatigue sydrome. It certainly helps to explain how these flare-ups can come on in the most arbitrary manner with no obvious trigger. What if a high degree of sensory defensiveness underlies it all, in which case you can tackle the SD as a primary factor?
When we notice how our bodies work so closely (as does eveything in nature) with the cycles of waxing and waning, we gain the tremendous power that comes from accepting what is and ceasing to resist the natural rhythms that can also be our best source of strength when we harness them for our recovery.
Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?
When you can trust your feet, when you can feel the earth beneath you and when your body knows it can really trust where it is putting its weight down, your whole body relaxes, you become more instinctual in the way you walk, your balance improves, your left and right hemispheres get toned in their relationship with one another as you walk out in nature, and you come back feeling happier, healthier and as though you have had an all-round therapy just from putting one foot in front of the other. We need to use this...its foundational for good health!
How do you measure who you are, what makes you feel core-strong regardless of what else is going on, and how does this manifest in your physical health? Boy this feels like such a big post, too much in it to summarise so dive in if you are prepared to ask these questions with me.
"Without pain, I would be a neurodiverse hypermobile person (which is both to think and move outside the box…) with exceptional skills of insight and sensitivity, who knows how she likes to be and work and with whom and how to follow her best, most balanced, guidance through life." Excavating the gifts of diversity beyond a paradigm of struggle.
Living whole 