Its just so interesting to try-on the all-too-familiar chronic health "flare-up" scenario through the eyes of Sensory Defensive Disorder rather than through the more blinkered perspectives of a particular conditions such as fibromyalgia, hypermobility or chronic fatigue sydrome. It certainly helps to explain how these flare-ups can come on in the most arbitrary manner with no obvious trigger. What if a high degree of sensory defensiveness underlies it all, in which case you can tackle the SD as a primary factor?
When we notice how our bodies work so closely (as does eveything in nature) with the cycles of waxing and waning, we gain the tremendous power that comes from accepting what is and ceasing to resist the natural rhythms that can also be our best source of strength when we harness them for our recovery.
Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?
If you have ADHD then you don't need me to tell you what its like...but I didn't know I had so many coping methods until I started to write them down so here they are, in case they help.
Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.
Being an HSP isn't a flaw but an evolutionary advantage, as has been amply demonstrated by science and history. We were always meant to be the natural outliers of the community, by design, so that we could be the first to notice important things that others miss, picking up envornmental cues and alerting others to any danger that we sensed coming our way. But what happens when our alarms start to go off all the time and when or how do we get a respite? How does this relate to the modern age phenomenon of chronic pain, fatigue and systemic meltdown?
For the past few months I have been engaged in an experiment - me, the middle-aged autistic woman with a whole bundle of chronic pain syndromes, dancing twice a day almost every day. The result is, I can't possibly summarise the incredible benefits I have reaped, specifically within the context of autism but also relating to reduction of chronic pain...there are just too many to abbreviate and some of them may very well surprise you, so you will just have to read this post...
Autism is overdue to add its own part to the diversity conversation, because the kind of portrayals that it currently gets in the media and our society at large are well-and-truly in need of an overhaul. The world is ripe for achieving a whole new level of acceptance of diversity, in all its many forms and those with autism need to take a seat at that table.
Don’t think this has anything to do with you? Oxalates can be related to a wide range of health issues, from inflammation to urinary frequency, interstitial cystitis, nonspecific joint pain, carpel tunnel, nerve pain, weak bones, vulvodynia, rheumatoid arthritis, lupus, tissue destruction, autoimmune diseases, digestive problems, skin rashes, vision issues and just so many chronic pain issues, including fibromyalgia, plus very many more. There's also an intriguing link with autism and EDS...
If recovery from chronic illness is like a long-running detective story, with us as its protagonist, this year has felt like one of those chapters that make sense of quite a few things in a series of "a-ha" moments. And though what I have learned in quick succession may very-well have overwhelmed me, it has also enlightened me as in TO LIGHT ME UP with a new degree of self-appreciation and awareness, also clarity as to how certain root circumstances click together to make chronic illness what it is.