Middle of the night thinking-aloud about the links between insomnia, autism, oxalates, vulvodynia and interstitial cystitis, chronic pain, environmental sensitivities, low to borderline thiamine B1 levels and feeling like you want to jump out of your skin!
There is no one approach to fibromyalgia, it has to be a multi-system approach but this recap of what I know, with the help of a webinar I watched yesterday, has been a really big help in summarising all the key points and gaining some real clarity. Also for checking in with any approaches that need a little boosting and I also hope it might help anyone else who could do with a review.
How does chronic illness relate to hibernation and what can we learn from that? Importantly, what key part do glutamates play in both, leading to a far better grasp of how to approach your own recovery protocol?
Gut issues and neurodiversity is a BIG topic,affecting every single aspect of the nervous system and beyond. Diving in with some of what I've learned (the hard way) for myself as an autistic ADHD adult whilst hopefully offering some pointers and patterns to look out for.
Some of us have thinner boundaries, we perceive more and process far more deeply but is this a mistake, a curse or an error in our makeup...or are we simply looking at this all wrong?
Its just so interesting to try-on the all-too-familiar chronic health "flare-up" scenario through the eyes of Sensory Defensive Disorder rather than through the more blinkered perspectives of a particular conditions such as fibromyalgia, hypermobility or chronic fatigue sydrome. It certainly helps to explain how these flare-ups can come on in the most arbitrary manner with no obvious trigger. What if a high degree of sensory defensiveness underlies it all, in which case you can tackle the SD as a primary factor?
When we notice how our bodies work so closely (as does eveything in nature) with the cycles of waxing and waning, we gain the tremendous power that comes from accepting what is and ceasing to resist the natural rhythms that can also be our best source of strength when we harness them for our recovery.
Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?
If you have ADHD then you don't need me to tell you what its like...but I didn't know I had so many coping methods until I started to write them down so here they are, in case they help.
Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.