Hypermobility (also, PoTs, chronic pain and fatigue) as exaggerated fight, flight or freeze reaction

Its just so interesting to try-on the all-too-familiar chronic health "flare-up" scenario through the eyes of Sensory Defensive Disorder rather than through the more blinkered perspectives of a particular conditions such as fibromyalgia, hypermobility or chronic fatigue sydrome. It certainly helps to explain how these flare-ups can come on in the most arbitrary manner with no obvious trigger. What if a high degree of sensory defensiveness underlies it all, in which case you can tackle the SD as a primary factor?

Living with PoTS and dysautonomia

Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?

Chronic health journey recap: hardships, connections and gifts

Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.

Electrosensitivity and the Highly Sensitive Person

Being an HSP isn't a flaw but an evolutionary advantage, as has been amply demonstrated by science and history. We were always meant to be the natural outliers of the community, by design, so that we could be the first to notice important things that others miss, picking up envornmental cues and alerting others to any danger that we sensed coming our way. But what happens when our alarms start to go off all the time and when or how do we get a respite? How does this relate to the modern age phenomenon of chronic pain, fatigue and systemic meltdown?

The benefits of dancing for autism: my personal deep-dive

For the past few months I have been engaged in an experiment - me, the middle-aged autistic woman with a whole bundle of chronic pain syndromes, dancing twice a day almost every day. The result is, I can't possibly summarise the incredible benefits I have reaped, specifically within the context of autism but also relating to reduction of chronic pain...there are just too many to abbreviate and some of them may very well surprise you, so you will just have to read this post...