The pitfalls of identification with a label and the power of positivity

Labels can be so useful, for identifying, explaining, pooling information, finding things out...but they also come with pitfalls. Exploring how to use them (with caution) and also the power of positivity as a tool for breaking out of any boxes.

Why chronic fatigue syndrome is such a painfully inadequate label and considering how ME/CFS may be connected to neurodiversity

What's in a label and looking at the bigger picture: Considering the importance of using the right descriptor when conveying the seriousness of your condition to yourself and others whilst exploring a possible link between CFS / ME and neurodiversity.

Places that deplete

As an autistic person, some places instantly deplete me like I have taken a chemical bath or eaten something off my allergy list…the effect is that instantaneous. Exploring the importance of place as a primary factor in sensory processing and other aspects of neurodivergence.

Independence

The slow and steady loss of independence that can happen when you have a disability or health issue can be quite pernicious, quietly gnawing into the roots of your confidence until its too late to undo. Exploring ways that we get to feel independent in spite of other limitations and how important it is to preserve them.

Two ends of the see-saw: getting to see my ADHD brain in action

An unusually busy phase has blown some theories I once held about neurodivergent traits and chronic illness out of the water or reframed them in a new light. Exploring the link between needing to keep busy, pain perception, sensory sensitivity and chronic fatigue.

No sleep (a middle aged female angle)

Middle of the night thinking-aloud about the links between insomnia, autism, oxalates, vulvodynia and interstitial cystitis, chronic pain, environmental sensitivities, low to borderline thiamine B1 levels and feeling like you want to jump out of your skin!

Moving towards your best post-burnout autistic life

Longing to find "your place" in the world, to reclaim your energy from the need to mask, to set parameters around exposures to sensory, social and other factors that detract from quality of life and to be fully unapologetically autistically yourself. What would your best post-burnout autistic life look like and how good would it make you feel?

The peaks and the perils of hyperfocus: a seasonal perspective

Exploring the trials and tribulations of Christmas as an autistic-ADHD adult prone to hyperfocus; and how this one trait alone can be the source of stress and burnout, yet still so much you can do better, including self-compassion, once you realise and work with the trait.

A lifetime fuelled by pain and frustration: handling the emotional fallout of long-term undiagnosed autism

A combination of having a blind spot when it comes to your own emotions (alexithymia) and a lifetime of fear around unleashing strong emotions.not to mention the stockpile of anger, frustration and trauma from all the difficult years before diagnosis, can conspire to push strong emotions deep into the body. Exploring how autistic challenges such as these could manifest as chronic illness and especially chronic pain.