Here's my update, after almost 6 months of following a mega-dose thiamine (B1) protocol, and its good news so far...
Its just so interesting to try-on the all-too-familiar chronic health "flare-up" scenario through the eyes of Sensory Defensive Disorder rather than through the more blinkered perspectives of a particular conditions such as fibromyalgia, hypermobility or chronic fatigue sydrome. It certainly helps to explain how these flare-ups can come on in the most arbitrary manner with no obvious trigger. What if a high degree of sensory defensiveness underlies it all, in which case you can tackle the SD as a primary factor?
There's a degree of sensitivity that goes way beyond the standard definition of being highly-sensitive and turns into pathology and lost quality of life. It is as isolating as it is impossible to explain to others and can feel as though it came from nowhere, or perhaps has been there all of your life in one form or another, perhaps amping-up with the passing of time or added stresses and trauma, yet often making no sense at all in the context of how well you look after yourself, strive for a healthy life and cultivate positive attitudes and yet, all through your nervous system, there are triggers, over-reactions and pain. Its as though your nervous system is laid wide-open to the sky rather then held, or supported, by life. Exploring sensory defensiveness, where does it come from, how do we tackle it (because, apparently, we can with good results and thus I am). This will be the first of my shares on the topic as I progress through the protocol.
When we notice how our bodies work so closely (as does eveything in nature) with the cycles of waxing and waning, we gain the tremendous power that comes from accepting what is and ceasing to resist the natural rhythms that can also be our best source of strength when we harness them for our recovery.
Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?
The natural response of the mind is often to shut-down vague recollections of some past event that you don't remember fondly but there lies the problem...we shut it down consciously, yet the body continues to harbour the irritation or pain, at the subconscious level, which then has no choice but to manifest as imbalance or some other symptom, that feeling of perpetuation in the body (on and on and on in perpetuity = "chronic") and, of course, where one "off-kilter" energy tends to linger, other sticky energies will attract, leading to escalation (the "snowball" effect).
Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.
Do you have marked seasonal difference in your health symptoms? Many people do! However, when we learn to accept them, know them and work with them we get to find a new kind of equilibrium in spite of them, and that brings its own seasonal gifts.
The effects of vitamin B1 (thiamine) deficiency are widespread, sometimes bizarre, much-more common in the western world than we think...and look a lot like certain chronic conditions we all know so well in this space. So, what does saturating the body with high dose B1 do? I'm about to find out...
With renewed clarity, I find I can see the path that led into many years of chronic pain...and the way out of it. Sharing some bullet-point thoughts on this topic, to help and inspire you, for the start of this potential-filled new year.