Living with PoTS and dysautonomia

Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?

Should you really wear cushioned shoes with hypermobility issues?

When you can trust your feet, when you can feel the earth beneath you and when your body knows it can really trust where it is putting its weight down, your whole body relaxes, you become more instinctual in the way you walk, your balance improves, your left and right hemispheres get toned in their relationship with one another as you walk out in nature, and you come back feeling happier, healthier and as though you have had an all-round therapy just from putting one foot in front of the other. We need to use this...its foundational for good health!

Let me tell you what is doing me good…

I am reminded by what I am about to share (a transformation in progress) that slow-steady transformation on the inside happens in just the same way, in tiny increments, and more so without the burden of high-expectations, the deadly weight of huge targets or imperatives...just simply rising up and making that small effort, day after day, with steady faith in the outcome.

The benefits of dancing for autism: my personal deep-dive

For the past few months I have been engaged in an experiment - me, the middle-aged autistic woman with a whole bundle of chronic pain syndromes, dancing twice a day almost every day. The result is, I can't possibly summarise the incredible benefits I have reaped, specifically within the context of autism but also relating to reduction of chronic pain...there are just too many to abbreviate and some of them may very well surprise you, so you will just have to read this post...

Cultivating joie de vivre

As an autistic person, I find there is a definite link here between my particular wiring for high sensory processing, which can make me feel more overwhelmed than some other people might be in the same situation, along with a tendency to live in my thoughts way too much, plus also the need to actively process those senses though my body in such a way that the body fully registers them, but without overwhelm, on the way through…because, otherwise, I can tend to bypass the body altogether. Not least because of issues with chronic pain, learning to bypass the body can become a really big issue. Also gentle grounding activities, such as letting energy passively drain through me into Mother Earth, doesn’t feel quite enough.

Rather, I tend to need to actively participate in the processing part in order to remember what my body is there for…and that it is important and useful for me to have one (something I tend to forget…), which is where the power of dance comes in for me. Dancing, quite literally, puts me back in touch with my body and helps me to remain more grounded for a long time afterwards. Yet whilst this especially applies to someone like me, as in highly sensitive person with autistic wiring, I suspect it applies to anyone that lives in their head and has become detached from their body to a very high degree…which is more common that you might think; a typical modern phenomenon.

I plan to share much more about the proven benefit of dancing, for autistic people, soon in another post that I’m working on for Living Whole.

To start off this topic, here is a post I shared yesterday, in my other blog Spinning the Light, on the importance of GROUNDING joy into the physical body (an absolute essential for health and for navigating these times), whatever that happens to take in your particular case.

Cultivating joie de vivre

spinning the light

…has never been more important, or elusive-seeming, so how do we conjure up, specifically, grounded joy, rooted in the body, during such challenging times?

(As doing the research that led to my retrospective post the other day reminded me) a relentless sense of my own joy of life has always been one of my defining traits, as it were, rescuing me from some very hard times, even way back when as a child feeling quite helpless in situations that traumatised me. As an adult now dealing with chronic health challenges, I have come to regard it as an utterly essential ingredient of life, so much so that I cringe when I watch so many people loose their grip on it (not that I blame them in the circumstances) because of perceiving themselves as victims of those circumstance, knowing as I do that unless we take our own personal steps to…

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