Here's my update, after almost 6 months of following a mega-dose thiamine (B1) protocol, and its good news so far...
If you have ADHD then you don't need me to tell you what its like...but I didn't know I had so many coping methods until I started to write them down so here they are, in case they help.
I am still relately new to CBD topicals but here's what I have found after some experimentation, leading to some promising outcomes concerning muscle, nerve, skin and joint pain.
Continuing on from my last post, diving into the topic of hormone balance and autism, particulalrly relating to adult females on the spectrum and those with corresponding pain conditions such as EDS. A personal discussion, backed up by recent studies.
There's no doubt that hormone balance (or lack of it) underlies health but how does it specifically relate to chronic pain conditions such as Fibromyalgia or Ehlers Danlos Syndrome?
Don’t think this has anything to do with you? Oxalates can be related to a wide range of health issues, from inflammation to urinary frequency, interstitial cystitis, nonspecific joint pain, carpel tunnel, nerve pain, weak bones, vulvodynia, rheumatoid arthritis, lupus, tissue destruction, autoimmune diseases, digestive problems, skin rashes, vision issues and just so many chronic pain issues, including fibromyalgia, plus very many more. There's also an intriguing link with autism and EDS...
My physical foibles (labelled such things as EDS and chronic pain) don't render me unentitled to a gloriously reimagined health future but even more prone to be open minded and eager enough to embark on the journey because there are no rules where I dwell, it is all a giant leap in the dark so why not make it a leap towards what I prefer to envision and thus create. The first step is to make friends with movement...
Adopting healthy habits is the thing that will get us all through this challenging phase and so here's the point I'm making here: The religious practice I speak of here is nothing to do with attending "church" (we need to reclaim that association back, to re-empower ourselves), its to do with devotion…to one's self, one's life…and the conscientious, faithful practice of observances that affirm one's existence as spirit in human form (a long way around of saying “health”); and on this topic I have much to say.
Hard science has uncovered a mechanism whereby the same collagen abnormalities in EDS that make joints especially flexible seem to affect blood vessels, making those with it prone to accumulation of blood in the veins of the legs, an effect that may lead to exaggerated cardiovascular responses to maintain the output of blood from the heart. This and other foibles, which I feel are versions of the same response, put those of us with this issue under immense pressure and strain, all the time, as our version of "normal" so just imagine how much we then react to any additional triggers, to which we tend to be hypersensitive (I share my about theory about that too...), setting off our nervous system at regular intervals in a way that has nothing inherently to do with mental health...although, no surprise, it can start to manifest as anxiety over time. Joining some dots and celebrating just how much people with hypermobility type EDS deal with as their daily benchmark...plus some practical ways of making it better.
It can feel like a very long walk down a dimly lit corridor when you are trying to fathom your way out of a long running health condition such as fibromyalgia, as I expect others on the journey could probably relate to. From time to time, if you’re fortunate and diligent enough in pursuit of … Continue reading Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once