Could people with fibromyalgia, ironically, be less suceptible to covid-19 and the worst of its effects than the rest of the population? A new study (Interleukin Deficiency Disorder Patient Responses to COVID-19 Infections, Journal of Advances in Medicine and Medical Research, 2021) suggests so and when I read about it today in this article, I … Continue reading An advantage to fibromyalgia?
Autism is overdue to add its own part to the diversity conversation, because the kind of portrayals that it currently gets in the media and our society at large are well-and-truly in need of an overhaul. The world is ripe for achieving a whole new level of acceptance of diversity, in all its many forms and those with autism need to take a seat at that table.
Don’t think this has anything to do with you? Oxalates can be related to a wide range of health issues, from inflammation to urinary frequency, interstitial cystitis, nonspecific joint pain, carpel tunnel, nerve pain, weak bones, vulvodynia, rheumatoid arthritis, lupus, tissue destruction, autoimmune diseases, digestive problems, skin rashes, vision issues and just so many chronic pain issues, including fibromyalgia, plus very many more. There's also an intriguing link with autism and EDS...
In our DNA coding, we are all we have ever been and could be, some of it realised, some tucked away, some as yet to be activated, but when things aren’t going so well and we defer to some other version of self that feels historic, there are questions to be asked; what is it that we so-nostalgically crave about that earlier experience, what does it offer that we now believe we lack? Is it the sheer fact of simplicity or is it the absence of predators, of duality or stress? Why do we ever crave winding the clock back; can we glean that same "thinking" going on in our biology? What can this tell us about how to tackle the healing process, to get past those really deep "stuck-points"...and how do we recruit quantum methods to hasten that along?
...for those of us who are especially sensitive, though the idea of being "out" amongst a load of other people in a room together is quite abhorrent as an idea, the reality is we could benefit from this more than most...because its the missing link to our health, we have to dare to go there to break the stalemate of our stuckness, and choir is an appropriate way in as it puts us where harmony is the very name of the game.
Hard science has uncovered a mechanism whereby the same collagen abnormalities in EDS that make joints especially flexible seem to affect blood vessels, making those with it prone to accumulation of blood in the veins of the legs, an effect that may lead to exaggerated cardiovascular responses to maintain the output of blood from the heart. This and other foibles, which I feel are versions of the same response, put those of us with this issue under immense pressure and strain, all the time, as our version of "normal" so just imagine how much we then react to any additional triggers, to which we tend to be hypersensitive (I share my about theory about that too...), setting off our nervous system at regular intervals in a way that has nothing inherently to do with mental health...although, no surprise, it can start to manifest as anxiety over time. Joining some dots and celebrating just how much people with hypermobility type EDS deal with as their daily benchmark...plus some practical ways of making it better.
We are going through some significant transitions right now, and many of us in our personal lives too; so what do these transitional phases have to tell us; what are they about at the personal and broadest level....and how are these all linked together. Speaking as one who feels them quite profoundly in my body, these are my thoughts...
It can feel like a very long walk down a dimly lit corridor when you are trying to fathom your way out of a long running health condition such as fibromyalgia, as I expect others on the journey could probably relate to. From time to time, if you’re fortunate and diligent enough in pursuit of … Continue reading Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once
Imagine going through life at cross-purposes with most of the people around you...not because you are broken but because you are different to a degree you didn't realise until now. Plunging the challenging world of neurodiverse relationships from personal experience, from some books I can recommend and from the perspective of some fresh new approaches to autism that are (thankfully) starting to appear.
There's nothing to be lost by being wrong (as I am prepared to admit), just as long as you learn from it. Better still, regard it as an opportunity to mix the timely reminder together with new things that you have only just become aware of...which is when you realise there really are no mistakes, only evolutions!
So, last time I shared about getting back on my bike and here's how it went afterwards...