Hard science has uncovered a mechanism whereby the same collagen abnormalities in EDS that make joints especially flexible seem to affect blood vessels, making those with it prone to accumulation of blood in the veins of the legs, an effect that may lead to exaggerated cardiovascular responses to maintain the output of blood from the heart. This and other foibles, which I feel are versions of the same response, put those of us with this issue under immense pressure and strain, all the time, as our version of "normal" so just imagine how much we then react to any additional triggers, to which we tend to be hypersensitive (I share my about theory about that too...), setting off our nervous system at regular intervals in a way that has nothing inherently to do with mental health...although, no surprise, it can start to manifest as anxiety over time. Joining some dots and celebrating just how much people with hypermobility type EDS deal with as their daily benchmark...plus some practical ways of making it better.
We are going through some significant transitions right now, and many of us in our personal lives too; so what do these transitional phases have to tell us; what are they about at the personal and broadest level....and how are these all linked together. Speaking as one who feels them quite profoundly in my body, these are my thoughts...
It can feel like a very long walk down a dimly lit corridor when you are trying to fathom your way out of a long running health condition such as fibromyalgia, as I expect others on the journey could probably relate to. From time to time, if you’re fortunate and diligent enough in pursuit of … Continue reading Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once
Imagine going through life at cross-purposes with most of the people around you...not because you are broken but because you are different to a degree you didn't realise until now. Plunging the challenging world of neurodiverse relationships from personal experience, from some books I can recommend and from the perspective of some fresh new approaches to autism that are (thankfully) starting to appear.
There's nothing to be lost by being wrong (as I am prepared to admit), just as long as you learn from it. Better still, regard it as an opportunity to mix the timely reminder together with new things that you have only just become aware of...which is when you realise there really are no mistakes, only evolutions! So, last time I shared about getting back on my bike and here's how it went afterwards...
The topic of "what do you believe?" is especially important to delve into when you are in recovery from illness and concerned with your ongoing physical and emotional wellbeing or wanting to shift through any stuck areas of your life; so I am sharing a post that I published on Spinning the Light this morning. … Continue reading Working with the power of belief
The propensity to teach ourselves new skills and prefer to do things our own way from the outset is, I suspect, a trait of high-functioning autism. It makes us into mavericks, it sometimes increases what looks like our failure or non-completion rate and it frustrates the hell out of partners when we prefer to construct things "out of the box" without first consulting the instruction leaflet. However, it also makes us movers and shakers when it comes to making paradigm leaps...a much needed skillset at this point in time.