Rejection Sensitive Dysphoria is debilitating, devastating, isolating and often quite unbearable and yet nobody that has not experienced it for themselves can imagine what it truly feels like on the inside; there is no point of reference for anyone that isn't wired that way since it is the product of particular genetics plus epigenetics combined with a lifetime of trauma. As a common experience of both autism and ADHD and something I experience myself, this important topic has been on my list of most daunting things to cover for quite some time...here goes.
When we notice how our bodies work so closely (as does eveything in nature) with the cycles of waxing and waning, we gain the tremendous power that comes from accepting what is and ceasing to resist the natural rhythms that can also be our best source of strength when we harness them for our recovery.
Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?
Women with ADHD tend not look like men with ADHD; we often hide it, we work around it, we express it differently and we harness it in ways that allow us to excel and do our suffering in private, we even seem to feel about it a different way to most men, so its absolutely essential to find other women and hear what they have to say if you are going to work out if this is really you!
Continuing on from my last post, diving into the topic of hormone balance and autism, particulalrly relating to adult females on the spectrum and those with corresponding pain conditions such as EDS. A personal discussion, backed up by recent studies.
There's no doubt that hormone balance (or lack of it) underlies health but how does it specifically relate to chronic pain conditions such as Fibromyalgia or Ehlers Danlos Syndrome?
How do you measure who you are, what makes you feel core-strong regardless of what else is going on, and how does this manifest in your physical health? Boy this feels like such a big post, too much in it to summarise so dive in if you are prepared to ask these questions with me.
You can find clues to lost parts of yourself in all sorts of surprise places...and they can strongly support the path to healing and wholeness when you allow them to speak to you about how or why you left them behind.
For the past few months I have been engaged in an experiment - me, the middle-aged autistic woman with a whole bundle of chronic pain syndromes, dancing twice a day almost every day. The result is, I can't possibly summarise the incredible benefits I have reaped, specifically within the context of autism but also relating to reduction of chronic pain...there are just too many to abbreviate and some of them may very well surprise you, so you will just have to read this post...
Autism is overdue to add its own part to the diversity conversation, because the kind of portrayals that it currently gets in the media and our society at large are well-and-truly in need of an overhaul. The world is ripe for achieving a whole new level of acceptance of diversity, in all its many forms and those with autism need to take a seat at that table.