The very fact of constantly having to adapt, to meet alien-feeling situations on their terms, when others just slide into circumstances like a hand into a well-fitting glove, exhausts systemically when we don’t even notice how much we are having to do it, how much we are constantly having to bridge the gap between what is and how we are. This may have been damaging our health for years, as surely as long term smoking or heavy drinking, only we didn’t realise it until it was too late to avoid the consequences to our health. This is why I am passionate about helping other high adapters, women especially, to realise, embrace and advocate for their neurodiversity early on in life. It seems to me, autistic women often have a sort of hypermobility of a more subtle kind; one that enables them to become whatever people expect of them…but at what cost.
The slow and steady loss of independence that can happen when you have a disability or health issue can be quite pernicious, quietly gnawing into the roots of your confidence until its too late to undo. Exploring ways that we get to feel independent in spite of other limitations and how important it is to preserve them.
No sleep (a middle aged female angle)
Middle of the night thinking-aloud about the links between insomnia, autism, oxalates, vulvodynia and interstitial cystitis, chronic pain, environmental sensitivities, low to borderline thiamine B1 levels and feeling like you want to jump out of your skin!
Low air pressure = increased body pressure and chronic pain
Exploring some of the links I have personally made between low barometric pressure and increased pain (also ADHD, intensity and sensitivity). Considering a non-linear approach to all of these areas (how linear are your symptoms, really), do changes in air pressure play a part?
A place for strain/counterstrain therapy in EDS hypermobility
In Ehlers Danlos, muscle spasm and rigidity is a compensatory measure for hypermobility, to stabilise the joint. As such, it stems from a different cause to what is typical (not tightness as for most people but a response from the central and peripheral nervous system) and thus requires a different approach, but what? Exploring the possibilities via therapy and listening to your own body as a primary approach.
The fascinating cross-over of ADHD and chronic illness (and other unsolvables)
I was at an outdoor concert in an idyllic setting listening to some of my favourite music and yet, less than 5 minutes into it, I realised some part of me was screaming an existential scream, knowing I was going to be sat there like this for the next couple of hours. Admitting I have ADHD, that I am wired to need more dopamine than most, that I am rewarded by all kinds of stims (and not all are created equal...plus some are much harder to come by when your health is compromised) is proving to be a massive step towards understanding chronic illness, how it came about and why it perpetuates.
Saved by qigong, again
If only I could convince everyone that spends their days tied to a sofa, who feels trapped by ever-worsening symptoms of some chronic illness, or state of overwhelmment, or other to give qigong a go…because I would dearly love them to reap all the benefits that I have this year. Living with chronic conditions can feel like a never ending series of mountains you have to climb but with qigong in my arsenal I seem to triumph more often than not and my mornings have become "what do I want to do today?" more so than"what do I have to deal with next?".
Hypermobility (also, PoTs, chronic pain and fatigue) as exaggerated fight, flight or freeze reaction
Its just so interesting to try-on the all-too-familiar chronic health "flare-up" scenario through the eyes of Sensory Defensive Disorder rather than through the more blinkered perspectives of a particular conditions such as fibromyalgia, hypermobility or chronic fatigue sydrome. It certainly helps to explain how these flare-ups can come on in the most arbitrary manner with no obvious trigger. What if a high degree of sensory defensiveness underlies it all, in which case you can tackle the SD as a primary factor?
Hypermobility and the moon (and other natural cycles)
When we notice how our bodies work so closely (as does eveything in nature) with the cycles of waxing and waning, we gain the tremendous power that comes from accepting what is and ceasing to resist the natural rhythms that can also be our best source of strength when we harness them for our recovery.
Living with PoTS and dysautonomia
Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?