Time for some good news...I've landed upon an approach to healing from chronic pain and other chronic conditions that has made some amazing inroads that look a lot like recovery and I have to share it or burst!
A possible cure

Time for some good news...I've landed upon an approach to healing from chronic pain and other chronic conditions that has made some amazing inroads that look a lot like recovery and I have to share it or burst!
Its a message I ingrained into myself years ago, when I read a book on the topic cover-to-cover in an afternoon and heard all the numerous, often subtle, frequently devastating symptoms of B12 deficiency and yet, though I pursued a vegetarian and vegan diet for many years, and continued to present with a multitude of … Continue reading Don’t underestimate B12 deficiency, ever!
The way human society is devised, the very foundation stones of its connectivity networks, is based on us all having relatable, sharable situations and people being able to recognise when another person is in strife. When you have chronic conditions that not only isolate you from other people due to an equally chronic lack of spoons, also causing you to be misunderstood by other people (as people tend to assume you are making up lame excuses when they can’t see the energy deficits you are having to work with!) then having the additional pitfall of nobody being able to recognise that you are ill, because your disabilities are hidden from sight, even when you finally come out of the woodwork, is the final sting in the tail.
The very fact of constantly having to adapt, to meet alien-feeling situations on their terms, when others just slide into circumstances like a hand into a well-fitting glove, exhausts systemically when we don’t even notice how much we are having to do it, how much we are constantly having to bridge the gap between what is and how we are. This may have been damaging our health for years, as surely as long term smoking or heavy drinking, only we didn’t realise it until it was too late to avoid the consequences to our health. This is why I am passionate about helping other high adapters, women especially, to realise, embrace and advocate for their neurodiversity early on in life. It seems to me, autistic women often have a sort of hypermobility of a more subtle kind; one that enables them to become whatever people expect of them…but at what cost.
From what I can tell, neurodiverse criteria for getting a good night's sleep can be very different to "norm"...and we may not be as anxious as we seem, measured by usual criteria. So how can we tell when we are worrying compared to when just NEED to stimulate ourselves awake in the middle of the night (and why might that be)?
When you thrive on predictability, how does your body cope with delayed or oddly-behaving seasons? Or with prolongued transitions? Or when "feeling too much" and energy overload (ironically) translate as deficit? Exploring the effect of seasonal changes from a neurodivergent perspective.
Looking into the potential triggers of a significant ME flare-up, noticing the kind of lifetime patterns and underlying (personal) stressors that might be at the root.
Exploring all the many reasons boosting oxytocin can be so important for someone that is autistic, who suffers from chronic pain or has dysautonomia issues such as POTs, amongst all the other benefits.
Middle of the night thinking-aloud about the links between insomnia, autism, oxalates, vulvodynia and interstitial cystitis, chronic pain, environmental sensitivities, low to borderline thiamine B1 levels and feeling like you want to jump out of your skin!
Longing to find "your place" in the world, to reclaim your energy from the need to mask, to set parameters around exposures to sensory, social and other factors that detract from quality of life and to be fully unapologetically autistically yourself. What would your best post-burnout autistic life look like and how good would it make you feel?