Gut issues and neurodiversity is a BIG topic,affecting every single aspect of the nervous system and beyond. Diving in with some of what I've learned (the hard way) for myself as an autistic ADHD adult whilst hopefully offering some pointers and patterns to look out for.
Rejection Sensitive Dysphoria is debilitating, devastating, isolating and often quite unbearable and yet nobody that has not experienced it for themselves can imagine what it truly feels like on the inside; there is no point of reference for anyone that isn't wired that way since it is the product of particular genetics plus epigenetics combined with a lifetime of trauma. As a common experience of both autism and ADHD and something I experience myself, this important topic has been on my list of most daunting things to cover for quite some time...here goes.
In Ehlers Danlos, muscle spasm and rigidity is a compensatory measure for hypermobility, to stabilise the joint. As such, it stems from a different cause to what is typical (not tightness as for most people but a response from the central and peripheral nervous system) and thus requires a different approach, but what? Exploring the possibilities via therapy and listening to your own body as a primary approach.
Some of us have thinner boundaries, we perceive more and process far more deeply but is this a mistake, a curse or an error in our makeup...or are we simply looking at this all wrong?
There's a degree of sensitivity that goes way beyond the standard definition of being highly-sensitive and turns into pathology and lost quality of life. It is as isolating as it is impossible to explain to others and can feel as though it came from nowhere, or perhaps has been there all of your life in one form or another, perhaps amping-up with the passing of time or added stresses and trauma, yet often making no sense at all in the context of how well you look after yourself, strive for a healthy life and cultivate positive attitudes and yet, all through your nervous system, there are triggers, over-reactions and pain. Its as though your nervous system is laid wide-open to the sky rather then held, or supported, by life. Exploring sensory defensiveness, where does it come from, how do we tackle it (because, apparently, we can with good results and thus I am). This will be the first of my shares on the topic as I progress through the protocol.
Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?
If you have ADHD then you don't need me to tell you what its like...but I didn't know I had so many coping methods until I started to write them down so here they are, in case they help.
Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.
With renewed clarity, I find I can see the path that led into many years of chronic pain...and the way out of it. Sharing some bullet-point thoughts on this topic, to help and inspire you, for the start of this potential-filled new year.
When one small thing breaks the camel's back, its usually time to stop and pay full attention. So often, its a clue to how we have been giving ourselves to everything, and everyone, else and not to our own needs...a key trait to notice when we have chronic conditions (because there seems to be a link)...