Living with PoTS and dysautonomia

Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?

Chronic health journey recap: hardships, connections and gifts

Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.

Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Its been a while since I've written for this blog because I've been deeply into the process of following the Gupta Program limbic retraining since February and wanted to give my all to that...ongoing. I've seen massive improvements in many area of my health management, far too many and particular to me to itemise and, … Continue reading Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Under pressure: the EDS anxiety link

Hard science has uncovered a mechanism whereby the same collagen abnormalities in EDS that make joints especially flexible seem to affect blood vessels, making those with it prone to accumulation of blood in the veins of the legs, an effect that may lead to exaggerated cardiovascular responses to maintain the output of blood from the heart. This and other foibles, which I feel are versions of the same response, put those of us with this issue under immense pressure and strain, all the time, as our version of "normal" so just imagine how much we then react to any additional triggers, to which we tend to be hypersensitive (I share my about theory about that too...), setting off our nervous system at regular intervals in a way that has nothing inherently to do with mental health...although, no surprise, it can start to manifest as anxiety over time. Joining some dots and celebrating just how much people with hypermobility type EDS deal with as their daily benchmark...plus some practical ways of making it better.

CBD for IBS, menopause and pain

A number of articles are springing up to discuss the interest in CBD from an irritable bowel syndrome point of view and I was curious about this due to my own experiences in this regard, which I will relate below. The reason why cannabis is theorised to be a new and appropriate means for tackling … Continue reading CBD for IBS, menopause and pain

The vagus nerve: leading us back to our health

There's literally nothing to lose and everything to gain from a healthier vagus nerve. Like all the best paths, it starts out a little mysterious but that's where its adventure lies. I've certainly had cause to explore it lately as its been found to have just so many links with the most chronic, mysterious, health conditions....and here's what I found out (to my benefit, maybe yours). So, having found it and become so much more aware of it, I like to think the vagus nerve is a path worth following as, so it turns out, it may very well lead us back to ourselves in more ways than one!

Super-thriving the menopause

A woman's life was never meant to be a linear progression from cradle to grave...she is uniquely designed to undergo complete METAMORPHOSIS in the middle. When we overlook that long-buried fact, things can get horrendously muddled in a woman's life and, above all, her health. From just surviving menopause to THRIVING through menopause; how to generate the necessary inner fire and make the transition conscious and graceful instead of precariously accidental and fraught with challenges.

Itching to get there

The many and varying, often uncomfortable, symptoms of a woman's mid-life transition are all versions of this metaphorical (you could even say, metaphysical) "itch". Really, its transformation underway...a metamophosis...and in making it mundane, by denying it or even making it seem like a problem, a curse, we fight back against what is really like a spreading of wings from the chrysalis; bewilderingly, disorientingly beautiful. Our culture has done terrible things to downplay the stage of her life that is all about female empowerment and there is a minefield of superstitious beliefs and misinformation around it; no wonder we hurt and struggle our way through it. When we welcome and encourage that transition, we allow for it to be smoother...and there a number of reasons why we might want to be doing that. These are, you could say, the times we have always been waiting for...