The benefits of dancing for autism: my personal deep-dive

For the past few months I have been engaged in an experiment - me, the middle-aged autistic woman with a whole bundle of chronic pain syndromes, dancing twice a day almost every day. The result is, I can't possibly summarise the incredible benefits I have reaped, specifically within the context of autism but also relating to reduction of chronic pain...there are just too many to abbreviate and some of them may very well surprise you, so you will just have to read this post...

Not broken or special, it’s just how I’m made

Autism is overdue to add its own part to the diversity conversation, because the kind of portrayals that it currently gets in the media and our society at large are well-and-truly in need of an overhaul. The world is ripe for achieving a whole new level of acceptance of diversity, in all its many forms and those with autism need to take a seat at that table.

Oxalates, pain and autism

Don’t think this has anything to do with you? Oxalates can be related to a wide range of health issues, from inflammation to urinary frequency, interstitial cystitis, nonspecific joint pain, carpel tunnel, nerve pain, weak bones, vulvodynia, rheumatoid arthritis, lupus, tissue destruction, autoimmune diseases, digestive problems, skin rashes, vision issues and just so many chronic pain issues, including fibromyalgia, plus very many more. There's also an intriguing link with autism and EDS...

Getting down to the root of my fibromyalgia

If recovery from chronic illness is like a long-running detective story, with us as its protagonist, this year has felt like one of those chapters that make sense of quite a few things in a series of "a-ha" moments. And though what I have learned in quick succession may very-well have overwhelmed me, it has also enlightened me as in TO LIGHT ME UP with a new degree of self-appreciation and awareness, also clarity as to how certain root circumstances click together to make chronic illness what it is.

The Princess and the Pea, that’s me

When we open our minds to the fact we have access to experiences we can't always explain with logic, we realise we are the early warning system to ourselves. Above all, when we allow ourselves, we just know what we know...with every instinct in our body and soul and this is our gift; albeit it a typically double-edged one...(read on).

Too much (not too little) going on

This is an add-on to an earlier post since I just came across “the intense world” theory proposed by of Henry Markram, director of the Brain Mind Center at the Swiss Federal Institute of Technologym, which seems highly relevant to it. In that previous post, entitled High-sensitivity, synesthesia...and hearing tones, seeing lights or other anomalous experiences, … Continue reading Too much (not too little) going on

Who knows your pain

When we are in chronic pain, or even an episode of acute pain that seems to go on and on, who do we share that with, can we even expect to share and does it make it better or worse to convey to loved ones what we are going through? Yet, do we need that outlet of saying it like it is and not feeling so isolated in our experience and, if so, where do we get that from, without stirring up the pot to make ourselves feel all the more defeated from over-talking it. This conundrum is familiar territory to anyone who lives with pain, chronic illness, even the disillusionment of daily chronic fatigue. Sharing some home truths, perhaps some helpful perspectives, from my own experience of this highly emotive topic.

High-sensitivity, synesthesia…and hearing tones, seeing lights or other anomalous experiences

Some people, and I count myself among them, are prone to experiencing anomalous experiences; that is, experiences that lie outside the so-called "norm", from high-frequency "tones" ay and night to flashing "lights" and many more special effects. These count as some of the most disturbing and supposedly detrimental to quality of life of all experiences people are said to be encountering in their health today; alarming and even depressing them into states of hopelessness in many cases. Yet what if these sensations are not what they seem, via the rundamentory five-senses system we currently rely upon. What if, like the artist scrabbling for the right colour to express a brand new hue that seeks expression and having to draw on many pigments, textures, all kinds of materials mixed torgether just to get even close to an aproximation of this new "message" that is coming through, our bodies are forced to mix up all our sensory messages...yes, like synesthesia...to try and get through to us something that is just so very important...and its all for us to hear.