Why chronic fatigue syndrome is such a painfully inadequate label and considering how ME/CFS may be connected to neurodiversity

What's in a label and looking at the bigger picture: Considering the importance of using the right descriptor when conveying the seriousness of your condition to yourself and others whilst exploring a possible link between CFS / ME and neurodiversity.

Places that deplete

As an autistic person, some places instantly deplete me like I have taken a chemical bath or eaten something off my allergy list…the effect is that instantaneous. Exploring the importance of place as a primary factor in sensory processing and other aspects of neurodivergence.

Independence

The slow and steady loss of independence that can happen when you have a disability or health issue can be quite pernicious, quietly gnawing into the roots of your confidence until its too late to undo. Exploring ways that we get to feel independent in spite of other limitations and how important it is to preserve them.

On oxalates, glutamates, autism and DNA

It seems that autism does lend itself to glitchy handling of oxalates, glutamates and some other dietary factors including omega 3s and certain vitamins, with broad ranging effects on health, pain levels and mental wellbeing. Piecing together some of my own detective work to iron out life-long struggles due to dietary factors, hoping to shed some light for others.

No sleep (a middle aged female angle)

Middle of the night thinking-aloud about the links between insomnia, autism, oxalates, vulvodynia and interstitial cystitis, chronic pain, environmental sensitivities, low to borderline thiamine B1 levels and feeling like you want to jump out of your skin!

The peaks and the perils of hyperfocus: a seasonal perspective

Exploring the trials and tribulations of Christmas as an autistic-ADHD adult prone to hyperfocus; and how this one trait alone can be the source of stress and burnout, yet still so much you can do better, including self-compassion, once you realise and work with the trait.

A lifetime fuelled by pain and frustration: handling the emotional fallout of long-term undiagnosed autism

A combination of having a blind spot when it comes to your own emotions (alexithymia) and a lifetime of fear around unleashing strong emotions.not to mention the stockpile of anger, frustration and trauma from all the difficult years before diagnosis, can conspire to push strong emotions deep into the body. Exploring how autistic challenges such as these could manifest as chronic illness and especially chronic pain.

Low air pressure = increased body pressure and chronic pain

Exploring some of the links I have personally made between low barometric pressure and increased pain (also ADHD, intensity and sensitivity). Considering a non-linear approach to all of these areas (how linear are your symptoms, really), do changes in air pressure play a part?