History of a health burnout; what the past can teach me now

Such as we are experts in anything, those of us with long term health issues also possess a rich hoard of hard-won experience and insight into what made us chronic in the first place. So, what can we take from all the years of navigating our way through the experience of chronic illness as a means to averting a delayed recovery from covid or other trigger virus, especially when we notice any similarities with what we have been through before? Can we now take the overview in order to notice and better understand the patterns, weak spots and trip-wires of chronicness before they become ingrained this time?

Can silence and loneliness cause pain and other interesting observations

I'm noticing an effect...where too much quiet or lack of human connection can trigger massively increased rigidity in my body, poor breathing habits, temperature disregulation and other dysautonomic effects and massively increased pain, especially small fibre neuropathy. So what do people have to say about this; how might it be connected with chronic pain conditions, autism, social isolation, old age and more?

Are you becoming more aligned with yourself than you realised?

Has your year been really challenging in lots of ways….but….when you allow yourself to pull back and gain the overview, you can sense just how positively impactful and on track it has all really been? Can you sense how you have actually been getting much more in alignment with who you really are all along the way, if not always by the most predictable or tidy means? Can you sense that it has all been part of a new level of alignment taking shape, as though something is being orchestrated, however chaotic it may sometimes seem to be at the ground level? If you can even mildly glean that this applies to you then take pause for a moment in order to fully allow the realisation of this to swell in your consciousness. Take some time out at the end of the year to appreciate just how far you have come, no matter how messy or symptomatic your life still seems from within, and maybe jot down some of those things that have improved for you. Because its just so important, for your ongoing sense of progression, to notice how much nearer you now are to some aspiration you hold dear, unfinished business though it may all seem in this moment, or to notice all those many pieces of self-knowledge you wouldn't want to give back in exchange for easier circumstances, as have been picked up along the way. This is how we give ourselves the ongoing momentum to continue moving forwards, not to mention how we come to see the bigger picture of the way our lives are truly playing out so that we aren't always bogged down in the small stuff.

The effect of chronic stress and early-life trauma responses on long term health

Looking at what we already know about the effect of chronic unaddressed toxic stress and early life trauma-responses, specifically from the perspective of neurodivergence, and its possible link to chronic health issues.

The sustained traumatising effect of trying to lead a “normal” sensory life with a neurodivergent nervous system

I do believe that constantly drip-fed overstimulation traumatises those of us without appropriate filters and barriers to cope with sensory experiences that are not designed to accommodate neurodivergence and in such a way that compounds with time, affecting us in ways that other people can’t even begin to imagine as they’re simply not having the same experience as us. Quite literally, the only thing we have in common with the majority of people who are apparently dealing with the exact same situations as us is that we’re physically in the same space…because the way we experience that space is a whole other matter. We can try to explain (with variable degrees of success) but we can never take them there with us so they understand! Until we give this effect the most appropriate name, trauma, we don’t deal with it appropriately either…because we just keep on sucking it up and wondering why we struggle and burn out so often and in so many apparently unusual or creative ways. Yet in the case of any other trauma we would work much harder to notice when it was happening, to put a stop to it and heal from it…but how do you heal from something that is relentless and ongoing, which you have to expose yourself to in order to be part of anything in life that has something to do with being around other people or in the world as it has been made to be, which is highly overstimulating and often too much for our differently wired systems?

Cultivating the fierce self-compassion you need to keep your essence intact

Unnecessary exposures to sadness, negativity and grief suck vital life force out of people; take this from a hypersensitive person who knows all too well the cost to health. Learning how to fiercely curate the amount of exposure to negativity that we can cope with as an exercise in self-compassion.

Finding a happy medium (or, when your ideal doesn’t turn out to be so idyllic)

We tend to think we want some extremely strong version of what we think we long for on the full spectrum of choices, and often it’s the very opposite of what we currently have, but that’s usually just a reaction. The best life we can ever live is never a reaction but a choice. Making our own choices, rather than reacting, is how we get to upgrade our experiences of life by becoming mindful of what we really want and going after that. Life becomes its own upgrade when (perhaps forced by circumstances that challenge what we thought we knew) we get to surprise ourselves with what we find out about ourselves and then to be utterly, ruthlessly, honest about what we really want, which often turns out to be quite different to what we used to think that we wanted, perhaps for a very long time until now. This is the gift of the thing that challenges our normality, whether that's an illness or some other set of circumstances that, initially, seem to present more of something you craved...perhaps more time, more quiet, a slower pace...but as ever, there is a happy medium to be found. Realising this is the very first step to attaining it!

A quest to know myself better through synesthesia

I’m beginning to sense that in synesthesia lies the key of so many aspects of my long running chronic pain. If I could only gain a better viewpoint of what actually happens to me when I sense things, I suspect I might be able to catch a glimpse (like some sideways-on reflection of myself reflected back at me in a shop window) of some of the causative aspects of pain where no other provocation for pain seems to exist. This feels like a worthwhile line of enquiry for anyone who is neurodivergent and weary of how unusual levels of pain never seems to abate, especially as I think it is possible to have one of the less talked-about versions of synesthesia and not even realise it since it is your version of normal.