chronic fatigue syndrome

Boldly curating the unique life balance that enables your neurodiversity to thrive

~ Helen White ~ 4 Comments

At times, chronic illness has appeared like a more "socially acceptable" screen for so-called ADHD deficits that I am embarrassed to own up to....because I know, deep down, that they are not all that I have to offer, its just that the domestic routine of life fails to bring out my better qualities and it takes more variety and positive stimulation from life for me to light up and shine my unique light. When I don’t feed my need for positive hyperactivity, it presents as internal hyperactivity, mainly “overthinking” and then, given time, it ultimately presents as more and more physical symptoms....

Why chronic fatigue syndrome is such a painfully inadequate label and considering how ME/CFS may be connected to neurodiversity

~ Helen White ~ 2 Comments

What's in a label and looking at the bigger picture: Considering the importance of using the right descriptor when conveying the seriousness of your condition to yourself and others whilst exploring a possible link between CFS / ME and neurodiversity.

Freeze response: the intersection of autism, trauma and chronic illness

~ Helen White ~ 4 Comments

What happens when huge amounts of energy get stuck in the body as trauma, leading to a freeze response or shutdown? How does this intersect with chronic conditions such as CFS, fibromyalgia, sensory defensiveness or other syndromes and does being autistic make you more prone to this? How can somatic therapies be used to discharge years of trauma? Exploring through my own deep-dive into the territory.

Living with syndromes

~ Helen White ~ Leave a comment

Learning to live with any of the syndromes (CFS, POTs, fibro, CSS, EDS, MCAS, to name but a few) can be incredibly tough. From dealing with doubters and denial, discrimination, misunderstanding, thoughtlessness, rejection, loneliness, fear, self-doubt and all the other rigours of long term chronic illness, this post takes a look at it all.

The exercise paradox in recovery from chronic conditions

~ Helen White ~ Leave a comment

It may seem like a reasonable suggestion, that you increase your exercise to recover from chronic illnesses such as long covid or CFS...or is it really a terrible mistake that could make things much worse? Exploring the paradoxical role of exercise for recovery from these highly contrary conditions.

Living with PoTS and dysautonomia

~ Helen White ~ Leave a comment

Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?

Considering a mega-dose B1 approach to reversing chronic conditions

~ Helen White ~ 2 Comments

The effects of vitamin B1 (thiamine) deficiency are widespread, sometimes bizarre, much-more common in the western world than we think...and look a lot like certain chronic conditions we all know so well in this space. So, what does saturating the body with high dose B1 do? I'm about to find out...

How can I be too tired to talk, but seldom too tired to write?

~ Helen White ~ 1 Comment

Introversion, visual or non-linear thinking, social anxiety, chronic or social fatigue, autism, high sensitivity...looking at all the many, often overlapping, factors that might make writing preferable to conversation for a lot of people and considering is this wrong, of just wonderfully different?