A quest to know myself better through synesthesia

I’m beginning to sense that in synesthesia lies the key of so many aspects of my long running chronic pain. If I could only gain a better viewpoint of what actually happens to me when I sense things, I suspect I might be able to catch a glimpse (like some sideways-on reflection of myself reflected back at me in a shop window) of some of the causative aspects of pain where no other provocation for pain seems to exist. This feels like a worthwhile line of enquiry for anyone who is neurodivergent and weary of how unusual levels of pain never seems to abate, especially as I think it is possible to have one of the less talked-about versions of synesthesia and not even realise it since it is your version of normal.

No sleep (a middle aged female angle)

Middle of the night thinking-aloud about the links between insomnia, autism, oxalates, vulvodynia and interstitial cystitis, chronic pain, environmental sensitivities, low to borderline thiamine B1 levels and feeling like you want to jump out of your skin!

Low air pressure = increased body pressure and chronic pain

Exploring some of the links I have personally made between low barometric pressure and increased pain (also ADHD, intensity and sensitivity). Considering a non-linear approach to all of these areas (how linear are your symptoms, really), do changes in air pressure play a part?

Good vibrations

When you're hungry for good vibration, when your system basically runs on it above all other motivators, it runs the risk of sucking vibes in from many sources, not all of them equal. Exploring the cross-over of neurodivergence, stimming, addiction risk, the need to source the right energy for your life and the possibility of finding good health, even thriving, once you realise your energy needs are fundamentally different to other peoples.

Electrosensitivity and the Highly Sensitive Person

Being an HSP isn't a flaw but an evolutionary advantage, as has been amply demonstrated by science and history. We were always meant to be the natural outliers of the community, by design, so that we could be the first to notice important things that others miss, picking up envornmental cues and alerting others to any danger that we sensed coming our way. But what happens when our alarms start to go off all the time and when or how do we get a respite? How does this relate to the modern age phenomenon of chronic pain, fatigue and systemic meltdown?

Under pressure: the EDS anxiety link

Hard science has uncovered a mechanism whereby the same collagen abnormalities in EDS that make joints especially flexible seem to affect blood vessels, making those with it prone to accumulation of blood in the veins of the legs, an effect that may lead to exaggerated cardiovascular responses to maintain the output of blood from the heart. This and other foibles, which I feel are versions of the same response, put those of us with this issue under immense pressure and strain, all the time, as our version of "normal" so just imagine how much we then react to any additional triggers, to which we tend to be hypersensitive (I share my about theory about that too...), setting off our nervous system at regular intervals in a way that has nothing inherently to do with mental health...although, no surprise, it can start to manifest as anxiety over time. Joining some dots and celebrating just how much people with hypermobility type EDS deal with as their daily benchmark...plus some practical ways of making it better.

The Princess and the Pea, that’s me

When we open our minds to the fact we have access to experiences we can't always explain with logic, we realise we are the early warning system to ourselves. Above all, when we allow ourselves, we just know what we know...with every instinct in our body and soul and this is our gift; albeit it a typically double-edged one...(read on).

Taking a breather

In many ways, looking back at 2017, it looks like I did or "achieved" next to nothing (and I'm not the only person to be saying this) and yet...sometimes, when we take a breather, its the most important thing we can be doing. Some thoughts on some of the powerful things that I feel I got out of a the long slow breath of 2017; perhaps you too.