We all need some sort of containment, a reliable edge to our experiences, to enable us feel held and supported in life...and belief systems can do this for the majority of people (to a point). My neurodiverse way seems to have required that I build by own edges from scratch, plucked from a cacophony of sensory experiences and turned into the life supporting routines, rituals and focal points of my life; some distinctly more supportive than others (but getting there). Exploring the need for edges and how to make them better - Asperger's style.
Hard science has uncovered a mechanism whereby the same collagen abnormalities in EDS that make joints especially flexible seem to affect blood vessels, making those with it prone to accumulation of blood in the veins of the legs, an effect that may lead to exaggerated cardiovascular responses to maintain the output of blood from the heart. This and other foibles, which I feel are versions of the same response, put those of us with this issue under immense pressure and strain, all the time, as our version of "normal" so just imagine how much we then react to any additional triggers, to which we tend to be hypersensitive (I share my about theory about that too...), setting off our nervous system at regular intervals in a way that has nothing inherently to do with mental health...although, no surprise, it can start to manifest as anxiety over time. Joining some dots and celebrating just how much people with hypermobility type EDS deal with as their daily benchmark...plus some practical ways of making it better.
Late diagnosis with Asperger's could so easily have left me feeling stranded in no-man’s land but actually, in realising I have - really - been exploring my own particular wiring all my life (often through my bafflement with it, before I knew what it was), I discover I have found my life specialism; also my gift. Because I have truly come to regard this state of mind as giftedness; it is SUCH a precious gift once realised...
Like a penny dropping, those last moments that I spent with my mother and the stuck state in my health suddenly clicked together in my mind. Realising the importance of touch in all of our lives, even (perhaps especially) those on the autism spectrum...
When we are in chronic pain, or even an episode of acute pain that seems to go on and on, who do we share that with, can we even expect to share and does it make it better or worse to convey to loved ones what we are going through? Yet, do we need that outlet of saying it like it is and not feeling so isolated in our experience and, if so, where do we get that from, without stirring up the pot to make ourselves feel all the more defeated from over-talking it. This conundrum is familiar territory to anyone who lives with pain, chronic illness, even the disillusionment of daily chronic fatigue. Sharing some home truths, perhaps some helpful perspectives, from my own experience of this highly emotive topic.
If some of us feel as though we are floundering under he weight of "feeling too much" then lets take a broader and more optimistic view of this. Together, we are becoming more robust and I suspect the reawakening of the mirror neurone is a signal that we are descaling our furred up neurology in readiness for a bigger experience of all that it means to be human; which is a far less isolated, self-interested, muffled-up-to the ears experience than we have long tended to believe. In my view, this is the stuff of frontline evolution.
Today, I simply want to share this video discussion between Deva Premal, Miten and Dr Kennet R Pelletier, author of the forthcoming book "Change Your Genes, Change Your Life" on the topic of the healing power of mantra. This subject is very dear to my heart since I have found what they are discussing here … Continue reading Healing mantra