Pacing 101

When was the last time I just sat there and did absolutely nothing for long-ish phases of time? When did I, with hands on knees, just sit and watch the birds out of the window and let my mind become blank for more than just five minutes at a time? In fact, when do I ever allow myself to be still, without my mind flooding with a dozen new and ever-more more jet propelled urges to do half a dozen other things the moment I allow myself to get going again…and then, once I get going, becoming so hyperfocused I forget to get back to my pacing? Every time I allow myself a short period of activity, I risk becoming embroiled again. It’s hard…probably one of the hardest things (if not the hardest) I’ve ever attempted but the few times I managed to really master pacing, last week I began to feel noticeable benefits that I find hard to explain in words but I felt them clearly enough. There were distinct shifts in me that I hadn’t experienced for a long time, some of them for years, which manifested slowly and subtly like ghosts of a new experience stood on the periphery, contrasting starkly with all the stuck-feelings of chronicness. The best I can explain is that my nervous system felt less compressed or jangly, my body felt less hypertonic and my endorphins felt increased, in short bursts, that almost felt like excitement or waves of appreciation and something bordering on joyfulness. I can vaguely recall feeling like that much more often, even perhaps frequently, back in the good old days, back before ME/CFS took hold in such a way that it has become a whole other way of life but I think it had been a very long time since I had been there, even for a moment, until I started properly pacing last week and now I hold out for experiencing even more of this. It turns out pacing is not this passive thing, the "absence of activity" that I feared so much but this incredibly proactive thing that lets other good things happen.

Back to centre again

Bear this in mind when you consider even the best-intentioned elimination diet. Cultivating joy is central to everything if we are to thrive in life at all…and its an insider job. Take away your entitlement to prepare, look forward to and then relish, without undue fear, some of the most natural and delicious, healthy, food sources that others take for granted and you are quickly placed on a road to isolation, disillusionment and dispair. You begin to wonder what you have done to deserve such a thing…and this is certainly no route to healing!

The point of oxalates

What would my autism look like if it had been noticed 50 years ago, if I had been fed an appropriate diet supported by the full understanding of what best suits my particular biology, if I hadn't had to work so very hard to blend in as neurotypical for all these years as a matter of survival, and if my autism was welcomed as the useful and contributory trait that it is in its own unique way? Here, amongst some key observations about how "wrong" diet has had such a huge impact on my life, are some aspirations for the future of a world in which autism is better understood and has its valued place.