Beaking down "what happens" when you flare-up and coming to understand why your body migth tend to resort to these responses to certain triggers, usually in an effort to help you (an understanding that can occur to you when you slow down enough to listen, instead of letting fear lead the research party) can make for a big breakthrough in managing these dips...
Autism is overdue to add its own part to the diversity conversation, because the kind of portrayals that it currently gets in the media and our society at large are well-and-truly in need of an overhaul. The world is ripe for achieving a whole new level of acceptance of diversity, in all its many forms and those with autism need to take a seat at that table.
Don’t think this has anything to do with you? Oxalates can be related to a wide range of health issues, from inflammation to urinary frequency, interstitial cystitis, nonspecific joint pain, carpel tunnel, nerve pain, weak bones, vulvodynia, rheumatoid arthritis, lupus, tissue destruction, autoimmune diseases, digestive problems, skin rashes, vision issues and just so many chronic pain issues, including fibromyalgia, plus very many more. There's also an intriguing link with autism and EDS...
...for those of us who are especially sensitive, though the idea of being "out" amongst a load of other people in a room together is quite abhorrent as an idea, the reality is we could benefit from this more than most...because its the missing link to our health, we have to dare to go there to break the stalemate of our stuckness, and choir is an appropriate way in as it puts us where harmony is the very name of the game.
Hard science has uncovered a mechanism whereby the same collagen abnormalities in EDS that make joints especially flexible seem to affect blood vessels, making those with it prone to accumulation of blood in the veins of the legs, an effect that may lead to exaggerated cardiovascular responses to maintain the output of blood from the heart. This and other foibles, which I feel are versions of the same response, put those of us with this issue under immense pressure and strain, all the time, as our version of "normal" so just imagine how much we then react to any additional triggers, to which we tend to be hypersensitive (I share my about theory about that too...), setting off our nervous system at regular intervals in a way that has nothing inherently to do with mental health...although, no surprise, it can start to manifest as anxiety over time. Joining some dots and celebrating just how much people with hypermobility type EDS deal with as their daily benchmark...plus some practical ways of making it better.
It can feel like a very long walk down a dimly lit corridor when you are trying to fathom your way out of a long running health condition such as fibromyalgia, as I expect others on the journey could probably relate to. From time to time, if you’re fortunate and diligent enough in pursuit of … Continue reading Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once
Why does the kind of stiffness that can be likened to rigor mortis occur in the body of someone with fibromyalgia; are there any clues why that could happen in a living-breathing person? Rigor "stiffness" mortis "of death" says it all really....it is a condition of death so what makes it appear within life for just so many people, resulting in a kind of half-life. I had been here before but this time I wanted to get to the bottom of the mystery...
There's nothing to be lost by being wrong (as I am prepared to admit), just as long as you learn from it. Better still, regard it as an opportunity to mix the timely reminder together with new things that you have only just become aware of...which is when you realise there really are no mistakes, only evolutions!
So, last time I shared about getting back on my bike and here's how it went afterwards...
The propensity to teach ourselves new skills and prefer to do things our own way from the outset is, I suspect, a trait of high-functioning autism. It makes us into mavericks, it sometimes increases what looks like our failure or non-completion rate and it frustrates the hell out of partners when we prefer to construct things "out of the box" without first consulting the instruction leaflet. However, it also makes us movers and shakers when it comes to making paradigm leaps...a much needed skillset at this point in time.
This is an add-on to an earlier post since I just came across “the intense world” theory proposed by of Henry Markram, director of the Brain Mind Center at the Swiss Federal Institute of Technologym, which seems highly relevant to it. In that previous post, entitled High-sensitivity, synesthesia...and hearing tones, seeing lights or other anomalous experiences, … Continue reading Too much (not too little) going on
Living whole 