space weather

hEDS and “energy flu”

~ Helen White ~ Leave a comment

I’ve been calling it “energy flu” for decades but what I mean by this is when the environment changes and I sense it through every tissue and fibre of my hypermobile body and it affects me…affects literally all of me, like I’ve walked in or out of a pressure chamber and nothing is quite normal whilst I adjust. Talking about hEDS in relation to an increased sensitivity to environmental shifts, how this impacts sensations, symptom load such as pain and dysautonomias, functional ability, executive function and more and things you could possibly consider as a better way of managing these episodes.

Synesthesia or salience: autism and environmental sensitivity

~ Helen White ~ Leave a comment

In the case of those of us most sensitive to environmental factors, is "weather (or whatever it is) salience" a more apt term to describe a higher degree of awareness that leaves other people wondering what on earth we are talking about and does synaesthesia sometimes get recruited by our neurodiverse brains as a means of extending the basic sensory tools so that we get to gather far more "data" from our environment in an attempt to better "systemise" our experience of the otherwise random-seeming world we live in?

On oxalates, emotions, self-protection, autism and releasing: a hypothesis

~ Helen White ~ Leave a comment

Exploring the idea that certain chronically painful bodies have formed the habit of storing oxalates (toxic anti-nutrients) from common food sources in order to protect us when, really, this only does great harm...and how to get out of the subconscious mindset of vulnerability in order to heal.

When your autistic health is minutely synced to the (apparently discombobulated) seasons

~ Helen White ~ Leave a comment

When you thrive on predictability, how does your body cope with delayed or oddly-behaving seasons? Or with prolongued transitions? Or when "feeling too much" and energy overload (ironically) translate as deficit? Exploring the effect of seasonal changes from a neurodivergent perspective.

Independence

~ Helen White ~ Leave a comment

The slow and steady loss of independence that can happen when you have a disability or health issue can be quite pernicious, quietly gnawing into the roots of your confidence until its too late to undo. Exploring ways that we get to feel independent in spite of other limitations and how important it is to preserve them.

Living (not waiting)

~ Helen White ~ 2 Comments

So many of us feel like we are waiting for the other shoe to drop, breath held, with forces beyond our control seemingly holding all sway over our lives. All the more important, then, to corner some area of your life where you get to exercise the muscle of influencing things that feel creative and positive, whether this is a literal act of creation (and I don’t just mean art) or making decisions, taking actions, putting things in the diary that will help sculpt a better feeling about life, for yourself and others.

No sleep (a middle aged female angle)

~ Helen White ~ 3 Comments

Middle of the night thinking-aloud about the links between insomnia, autism, oxalates, vulvodynia and interstitial cystitis, chronic pain, environmental sensitivities, low to borderline thiamine B1 levels and feeling like you want to jump out of your skin!

Low air pressure = increased body pressure and chronic pain

~ Helen White ~ Leave a comment

Exploring some of the links I have personally made between low barometric pressure and increased pain (also ADHD, intensity and sensitivity). Considering a non-linear approach to all of these areas (how linear are your symptoms, really), do changes in air pressure play a part?

Fibromyalgia as an expression of “stuckness”

~ Helen White ~ Leave a comment

When an emotion gets buried in the body, what does it look like years later and are there links to chronic health conditions? How are unidentiified autism or ADHD linked to fibromyalgia and chronic fatigue, as is emerging? What is our body trying to tell us when it seems so "stuck" and is this a clue to our recovery?