Getting out of the boom-bust pattern of post exertional malaise

When we normalise over-exertion (as so many of us tend to do) we fail to even notice it any more and so we litter our lives with excuses for why we can't stop right now or take time out to rest. "Its tough at the moment but next year will be better" or "I just have to get through this or do this one last thing" we tell ourselves. In hindsight, its possible to see how we have been living as though caught up in, not just one boom or bust cycle but, a whole series of them, like overlapping circles lasting, in some cases, for a day, a week or month and, in others, as long as a year or even longer. Cycles where we have failed to factor in the appropriate respite before the next cycle of overdoing it begins, so we don't ever get the chance to fully recover from one exhausting thing before the next thing starts. These overexertions, all butted up against each other with no gaps in between, can start to systemically overwhelm us in time. Its not the whole reason for ME/CFS but it can be a big part of a defunct pattern that feeds into the repeated crashes and post-exertional malaise that so define the condition. So how do we spot our own pattern and learn from it; more importantly, how do we break out of it and stop it in its tracks in order to regain some sort of stability?

Ehlers Danlos and reproductive health issues…the unsung song

The very strong association between EDS or HSD and reproductive health issues is seldom talked about, even more rarely studied. Exploring the territory of how apparently more than half of women with EDS or HSD have vulvodynia, am alarming 77% report dyspareunia, so many have enhanced menopause issues that this is often the first thing that really flags up that they are hypermobile in the first place and that's not even touching on all the other issues they may have put up with along the way, such as dysmenorrhea (particularly painful periods), cysts, pregnancy issues and postpartum injury. Shedding a little bit of light on these topics and exploring anything, at all, that helps.

Why “groups” don’t work for me and other AuDHD friendship foibles

Exploring the challenges of making friendships as a neurodivergent woman, perhaps late-diagnosed, following years of trials and tribulations trying so hard to find meaningful connections before you "realised" and navigating some of the things that patently don't work for our preferences (for instance isn't "group friendship" an oxymoron?), also learning how and when to safely drop all those masks.

Choosing to become much more grounded in physical reality

Spirituality can be ungrounding to some autistic individuals; a controversial topic that I have intended to write about, from personal experience, for quite some time and which I have seen under discussion in some other quarters lately. Exploring the impact of a hyperfocused approach to spirituality on health, especially when, on top of inbuilt deficits in interoception, this potentially leads a person to become desperately unbalance and ungrounded in their physical body, leading to increased fragility and vulnerability.

Adult ADHD challenge: When you know you need to stop everything for while…but its a real struggle to do so

As someone with ADHD I can never completely stop or relax. I end up laughing at myself for my lack of ability to sustain even the most inviting moments of peace and inactivity for very long but I am also mortified. Almost as soon as I have clocked the perfection of such a moment, like taking a minds-eye photograph of it, I am already prepared to dismantle it and move on to the next thing. Its as though I am designed to blow-up such moments of completion, some part of me utterly compelled to drop the pebble in the smooth pond, like I just cant help myself!

Celebrating your wins

The mindset of "chronic" can close our minds to all the small and medium sized wins, the subtle but indisputable improvements, the learning curves and fresh starts. Its just so important to take pause to appreciate all the subtle ways that things have improved, been overcome or even just taught us beneficial things about ourselves and life in general, often with such positive outcomes when it comes to increased confidence, optimism, sense of progression and even joie de vivre.

Driven by positivity: an alternate spin on neurodiversity

Considering a hunger for positive feedback, recognition and praise as a main driver for a lot of people with ADHD, leading to a euphoric state on the rare times we ever receive it. Such positive feedback can turn us into a "whirling dervish" of positive energy and enable us to turn all that apparently erratic energy around and apply it to striving, thriving and making good things happen.

Cervical instability at the core of fibromyalgia?

Exploring why it may be worth considering cervical instability as a root cause of fibromyalgia with some real food for thought on how the wide-ranging symptoms of this one single, often hard to notice, factor can really start to add up.

History of a health burnout; what the past can teach me now

Such as we are experts in anything, those of us with long term health issues also possess a rich hoard of hard-won experience and insight into what made us chronic in the first place. So, what can we take from all the years of navigating our way through the experience of chronic illness as a means to averting a delayed recovery from covid or other trigger virus, especially when we notice any similarities with what we have been through before? Can we now take the overview in order to notice and better understand the patterns, weak spots and trip-wires of chronicness before they become ingrained this time?