The October Slide is real

I’ve been noticing the October slide into worse chronic health symptoms phenomenon for years (as reflected by countless posts alluding to it ever since I first started writing here) but, at last, I’m hearing tons of other people talking about, or maybe my ears are just pricked-up looking for more answers as ever, galling as it is to see a summer’s worth of steady health improvements set back like this once again. So what is it, why does it happen and what can be done to get through this heinously challenging time for some of us?

B6 toxicity? When there’s a reasonable posibility.

Potentially toxic levels of B6 supplements adversely affecting many people's health are finally hitting the spotlight and, by coincidence, just when I am finding out that they may have been a contributing factor to some of my worst and most frightening symptoms. Sharing the journey of discovery so far.

Pacing 101

When was the last time I just sat there and did absolutely nothing for long-ish phases of time? When did I, with hands on knees, just sit and watch the birds out of the window and let my mind become blank for more than just five minutes at a time? In fact, when do I ever allow myself to be still, without my mind flooding with a dozen new and ever-more more jet propelled urges to do half a dozen other things the moment I allow myself to get going again…and then, once I get going, becoming so hyperfocused I forget to get back to my pacing? Every time I allow myself a short period of activity, I risk becoming embroiled again. It’s hard…probably one of the hardest things (if not the hardest) I’ve ever attempted but the few times I managed to really master pacing, last week I began to feel noticeable benefits that I find hard to explain in words but I felt them clearly enough. There were distinct shifts in me that I hadn’t experienced for a long time, some of them for years, which manifested slowly and subtly like ghosts of a new experience stood on the periphery, contrasting starkly with all the stuck-feelings of chronicness. The best I can explain is that my nervous system felt less compressed or jangly, my body felt less hypertonic and my endorphins felt increased, in short bursts, that almost felt like excitement or waves of appreciation and something bordering on joyfulness. I can vaguely recall feeling like that much more often, even perhaps frequently, back in the good old days, back before ME/CFS took hold in such a way that it has become a whole other way of life but I think it had been a very long time since I had been there, even for a moment, until I started properly pacing last week and now I hold out for experiencing even more of this. It turns out pacing is not this passive thing, the "absence of activity" that I feared so much but this incredibly proactive thing that lets other good things happen.

Oxalates in review: one year into a lower oxalate diet

A year into a lower oxalate diet, what successes can I report? As it turns out, quite a few when I compare my far-less sensitive life now with the year before I made these changes, not to mention the biggest shift in symptoms and general health stability for years. Read on for a run down of all the improvements that I'm now appreciating in the rear view mirror.

Rediscovering your life-force through movement

Apart from being essential for wellbeing and general health, movement can help remind me where all my muscles are in space (given my proprioceptive equipment can be a bit compromised...), can also help me to be upright without my autonomic system always spinning off into a panic at the idea of gravity. Otherwise, when I forget I have a body (I'm autistic so "out of sight, out of mind" is pretty much my modus operandi) I very quickly lose the joy of it! Exploring the importance of having enough space to move about in when you have chronic conditions and are neurodivergent.

Why chronic fatigue syndrome is such a painfully inadequate label and considering how ME/CFS may be connected to neurodiversity

What's in a label and looking at the bigger picture: Considering the importance of using the right descriptor when conveying the seriousness of your condition to yourself and others whilst exploring a possible link between CFS / ME and neurodiversity.

Fibromyalgia as an expression of “stuckness”

When an emotion gets buried in the body, what does it look like years later and are there links to chronic health conditions? How are unidentiified autism or ADHD linked to fibromyalgia and chronic fatigue, as is emerging? What is our body trying to tell us when it seems so "stuck" and is this a clue to our recovery?

INFJ “Grip Stress” sheds light on lasting trauma and chronic pain

It's been a while since I wrote about Myers Briggs personality types though the method remains one of the most consistently useful tools I have ever used to come to deeply understand myself. Yesterday, I happened upon a particular foible of each personality type called a “grip stress" state, something I had never come across … Continue reading INFJ “Grip Stress” sheds light on lasting trauma and chronic pain