Fibromyalgia in review

There is no one approach to fibromyalgia, it has to be a multi-system approach but this recap of what I know, with the help of a webinar I watched yesterday, has been a really big help in summarising all the key points and gaining some real clarity. Also for checking in with any approaches that need a little boosting and I also hope it might help anyone else who could do with a review.

Living with PoTS and dysautonomia

Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?

Chronic health journey recap: hardships, connections and gifts

Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.

Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Its been a while since I've written for this blog because I've been deeply into the process of following the Gupta Program limbic retraining since February and wanted to give my all to that...ongoing. I've seen massive improvements in many area of my health management, far too many and particular to me to itemise and, … Continue reading Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Mechanism of a flare-up – how understanding can lead to relief

Beaking down "what happens" when you flare-up and coming to understand why your body migth tend to resort to these responses to certain triggers, usually in an effort to help you (an understanding that can occur to you when you slow down enough to listen, instead of letting fear lead the research party) can make for a big breakthrough in managing these dips...

Knowing your own limitations is the direct route to your superpowers

Knowing what your weaknesses are and, importantly, owning them can be the very first step to making your "problems" much simpler to navigate, avoiding the endless re-runs of such familiar-old challenges and then claiming all those hidden strengths that are just waiting for you to notice them beyond the smokescreen of struggle...

Getting down to the root of my fibromyalgia

If recovery from chronic illness is like a long-running detective story, with us as its protagonist, this year has felt like one of those chapters that make sense of quite a few things in a series of "a-ha" moments. And though what I have learned in quick succession may very-well have overwhelmed me, it has also enlightened me as in TO LIGHT ME UP with a new degree of self-appreciation and awareness, also clarity as to how certain root circumstances click together to make chronic illness what it is.

Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once

It can feel like a very long walk down a dimly lit corridor when you are trying to fathom your way out of a long running health condition such as fibromyalgia, as I expect others on the journey could probably relate to. From time to time, if you’re fortunate and diligent enough in pursuit of … Continue reading Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once