Living with PoTS and dysautonomia

Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?

Chronic health journey recap: hardships, connections and gifts

Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.

Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Its been a while since I've written for this blog because I've been deeply into the process of following the Gupta Program limbic retraining since February and wanted to give my all to that...ongoing. I've seen massive improvements in many area of my health management, far too many and particular to me to itemise and, … Continue reading Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Moving more, not less

My physical foibles (labelled such things as EDS and chronic pain) don't render me unentitled to a gloriously reimagined health future but even more prone to be open minded and eager enough to embark on the journey because there are no rules where I dwell, it is all a giant leap in the dark so why not make it a leap towards what I prefer to envision and thus create. The first step is to make friends with movement...