executive function

hEDS and “energy flu”

~ Helen White ~ Leave a comment

I’ve been calling it “energy flu” for decades but what I mean by this is when the environment changes and I sense it through every tissue and fibre of my hypermobile body and it affects me…affects literally all of me, like I’ve walked in or out of a pressure chamber and nothing is quite normal whilst I adjust. Talking about hEDS in relation to an increased sensitivity to environmental shifts, how this impacts sensations, symptom load such as pain and dysautonomias, functional ability, executive function and more and things you could possibly consider as a better way of managing these episodes.

What is “rolling PEM”?

~ Helen White ~ Leave a comment

Rolling PEM (post extertional malaise) tends to come on quite late after the multiple exertions that caused it, often creeping up on you unseen and then it comes on BIG. Its a trickster because it can even feel good at the time it starts accruing…I hear just so many people saying that they felt so good while they were in the thick of pushing through the big project or doing more exercise than normal or handling the new responsibility at work, that they felt like they were over ME/CFS; that they even thought that maybe they were getting permanently better at last, that it was a sign that they were ready to take on more. At the height of the adrenaline surge, you can feel as though you are more than coping, that things really are improving, that you are putting chronic illness behind you at last, so you then feel more confident to take on more of the "normal" things than you would otherwise dare...until, suddenly, it has the last laugh! I recently heard a description of it that went along these lines: if normal PEM is a debt that you always have to pay back after the energy overspend, like repaying a bank loan, then rolling PEM is like having to pay back a loan shark with unimaginable amounts of interest added on top. You really don't want to be indebted to that kind of debt collector because it will be utterly ruthless to deal with; there will be no more negotiating or delaying to be had, absolutely no leeway for extenuating circumstances given!

Learning to pick your hyperfocus

~ Helen White ~ 2 Comments

Hyperfocus run amok, if your neurodovergent brain is prone to it, can lose you a lot the the key moments, a great deal of the colour and richness, of actual life. The need to feel perpetually occupied in your head can be a tyrant when there are no checks in place. Learning to curate what you engage with, and when, as your latest area of hyperfocus can bring some relief and lead to far less mental exhaustion or overwhelm. By picking and choosing lighter topics of engagement, you can feel like you have taken a sort of brain holiday...without actually becoming too bored, which is probably something that you abhor to do.

Hormones and autism

~ Helen White ~ Leave a comment

Continuing on from my last post, diving into the topic of hormone balance and autism, particulalrly relating to adult females on the spectrum and those with corresponding pain conditions such as EDS. A personal discussion, backed up by recent studies.

Knowing your own limitations is the direct route to your superpowers

~ Helen White ~ 2 Comments

Knowing what your weaknesses are and, importantly, owning them can be the very first step to making your "problems" much simpler to navigate, avoiding the endless re-runs of such familiar-old challenges and then claiming all those hidden strengths that are just waiting for you to notice them beyond the smokescreen of struggle...

Executive function…reappraised

~ Helen White ~ 4 Comments

For years, I told myself my very biggest area of weakness was, in fact, my greatest strength...how's that for getting your life in a knot, leading to complete burnout, though very easily done as a woman with undiagnosed autism. Exploring the complete change of priorities that came out of this...and how it has significanly altered my a-typical lifestyle for the better.