Turns out I am one of probably thousands of people who been profoundly affected by misophonia all of my life and yet didn't know what it was and could never put a name to it (or quite dispel some of the shame of it)...until I began to research the effects of autism more and more by listening to other women's real-life stories. Sharing in case this is any of you too.
We each have our pool of genes but how these express can be a matter left in the hands of the various lifetime experiences we have; so how do we herd those cats back into line if they go wandering off where we would rather they didn't go?
Hard science has uncovered a mechanism whereby the same collagen abnormalities in EDS that make joints especially flexible seem to affect blood vessels, making those with it prone to accumulation of blood in the veins of the legs, an effect that may lead to exaggerated cardiovascular responses to maintain the output of blood from the heart. This and other foibles, which I feel are versions of the same response, put those of us with this issue under immense pressure and strain, all the time, as our version of "normal" so just imagine how much we then react to any additional triggers, to which we tend to be hypersensitive (I share my about theory about that too...), setting off our nervous system at regular intervals in a way that has nothing inherently to do with mental health...although, no surprise, it can start to manifest as anxiety over time. Joining some dots and celebrating just how much people with hypermobility type EDS deal with as their daily benchmark...plus some practical ways of making it better.
Revisiting this topic a year on during a (now rare) flare-up of Epstein-Barr symptoms, it feels like a great time to talk about all the massive health improvements achieved in that year through some new approaches to healing what can feel most stuck; not least via Anthony William The Medical Medium's amazing book which deserves another shout-out for being just so nail-on-the head with my experiences. If you have a so-called "unshiftable" chronic illness going on, this post is for you!
Is electro-sensitivity really "Type 3 diabetes" as research now suggests? This would certainly fit in with my experiences of it. Here's a frank discussion of the symptoms of ES plus suggestions of how to live with it and make your home habitable again...plus an invitation to talk about these things far more openly instead of discussing them in the rather embarassed and furtive way that has become the norm. If this is you, you aren't alone - a lot of people (one estimate suggests up to 60 million people) are now finding their health is being seriously affected by a sensitivity to EMFs. Its time...not to make an enemy of technology but... to open up the discussion so access to technology can evolve along side us, not at the expense of homeostasis and good quality of life. For me, its been a challenging yet enlightening journey. Throwing in my two-penneth from personal experience...(read more).