Reframing PEM and considering how it may be linked to delayed emotional and sensory processing in autism

How could having more sensory information to process than the next person and delayed emotional processing have to do with post exertional malaise or delayed onset pain and what could any connection between them tell us about PEM so that we can reframe it in a more positive light?

Considering monotropism

What is monotropism, can it really explain everything about the autistic experience of life, how does it make life extra hard for those with it (in an allistic world...) yet also, conversely, make taking deep-dives into their interests thrilling, joyful, adventurous and full of flow for those who do this, also what could it look like if they were encouraged to accept and embrace this kind of thinking style, enabling, accommodating, protecting and even appreciating it rather than fighting it or making it wrong?

Assessing the true price of the deep dive

If you are extremely prone to taking deep dives, the time comes for asking: What is the true price of doing this in terms of its impact on self-care; is it all worth it? What do I gain from this latest obsession? Is my self-care repeatedly suffering, coming second-best to my latest fixation? Have I succeeded in traumatising myself in the name of a few inches of increased knowledge? What did I lose, in terms of blissful ignorance or humanising innocence, when I opened up that latest can of worms? Should I continue or just drop it now, like a hot potato, to reclaim my peace of mind? Can I break this trend of pushing myself too hard, too relentlessly, without first assessing the value of what I am doing or whether my nervous system would rather be doing something else or even has the reserves to cope? Can I allow that it’s not always a waste of time to be less driven or intense? Can I guide my inbuilt intensity into more benign practices that generate joy and not so much discontent, fear and trauma? Can I actually learn to steer this neurodivergent vehicle of mine instead of running it off the rails?

The importance of finding your place

So many of us put up with living in less than ideal places and circumstances, especially if we feel we are stuck with them, but what if they are the missing piece of the whole health jigsaw. If we also happen to be neurodivergent, feeling "out of place" can be become such an innocuous-seeming sensation across the course of a lifetime because we become so acclimatised to feeling like a misfit in a lot of situations; our version of "normal". This makes it all too easy to ignore times when we are really in the wrong place or situation, when we should be doing something about it, especially when our health is being badly impacted. Clues might be subtle but we, of all people, are past masters at piecing together all the signs and patterns that tell us there is a better kind of life waiting for us somewhere, one that better fits the way we are wired.

Learning to pick your hyperfocus

Hyperfocus run amok, if your neurodovergent brain is prone to it, can lose you a lot the the key moments, a great deal of the colour and richness, of actual life. The need to feel perpetually occupied in your head can be a tyrant when there are no checks in place. Learning to curate what you engage with, and when, as your latest area of hyperfocus can bring some relief and lead to far less mental exhaustion or overwhelm. By picking and choosing lighter topics of engagement, you can feel like you have taken a sort of brain holiday...without actually becoming too bored, which is probably something that you abhor to do.

The positives of finding out you are autistic (if you are)

Before you realise you are autistic (if you are), all you tend to know is the outline of your autistic self, as in, the shape that is left where you don’t fit in with other people’s experiences. It’s a bit like drawing a portrait of someone by filling in the background and leaving a space where the person is standing; what they call a negative space composition, in art terms. You get to know what you aren’t…but not what you are. Such an approach tells you a lot about all the misfitting bits but nothing much about yourself and that, in itself, can be a source of ongoing trauma because it can leave you feeling like a blank. Finding out you are autistic begins a process of filling in all the blanks and getting to know who you actually are.

Cultivating the fierce self-compassion you need to keep your essence intact

Unnecessary exposures to sadness, negativity and grief suck vital life force out of people; take this from a hypersensitive person who knows all too well the cost to health. Learning how to fiercely curate the amount of exposure to negativity that we can cope with as an exercise in self-compassion.