Freeze response: the intersection of autism, trauma and chronic illness

What happens when huge amounts of energy get stuck in the body as trauma, leading to a freeze response or shutdown? How does this intersect with chronic conditions such as CFS, fibromyalgia, sensory defensiveness or other syndromes and does being autistic make you more prone to this? How can somatic therapies be used to discharge years of trauma? Exploring through my own deep-dive into the territory.

Autistic burnout and the dichotomy of “living to work” when your reality tells you it’s the other way around

All my life, I have struggled with the fixed cultural idea of "work", the ability to perform a job of work, to succeed at it as others do and to not burnout when I have one (having done so in every job I have ever had). I have discovered this is yet another common factor of autism and that it is profoundly linked to chronic health issues, to lifelong feelings of shame, of not belonging and of "being a failure", associated also with strong desires to work differently to mainstream and to get out of the present culture, change priorities around and do something different with life. In fact, an autistic viewpoint on some of these things could be of great value in these times, especially post-pandemic and faced with some of the current challenges. Exploring some of these things today.

Stomach issues, supplements and neurodiversity…what a pot of challenges!

Gut issues and neurodiversity is a BIG topic,affecting every single aspect of the nervous system and beyond. Diving in with some of what I've learned (the hard way) for myself as an autistic ADHD adult whilst hopefully offering some pointers and patterns to look out for.

Rejection Sensitive Dysphoria

Rejection Sensitive Dysphoria is debilitating, devastating, isolating and often quite unbearable and yet nobody that has not experienced it for themselves can imagine what it truly feels like on the inside; there is no point of reference for anyone that isn't wired that way since it is the product of particular genetics plus epigenetics combined with a lifetime of trauma. As a common experience of both autism and ADHD and something I experience myself, this important topic has been on my list of most daunting things to cover for quite some time...here goes.

“Let me share an example from my life” (neurodivergence in the context of relating)

Nurodivergents and neurotypicals are sometimes poles apart in their communication styles but imagine if we could just try to meet on some common ground whilst accepting those differences (that last part is key…nobody should be required to change themselves). Isn’t this exactly where the best hopes of humanity lie, as in, meeting across the so-called impossible divide?

Chronic environment

Environment is such a big topic when it comes to chronic illness, perhaps an obvious one too but I also think far too many people with chronic health problems get so wrapped up in their own situation that they fall into the trap of imagining all their problems stem from a faulty body. Even when they do realise the environment may be playing a considerable part, they don't seem to see what the issues are or they assume there is nothing that can be done about it, but that's not entirely true...awareness always leads to choices we may have overlooked.

Living with syndromes

Learning to live with any of the syndromes (CFS, POTs, fibro, CSS, EDS, MCAS, to name but a few) can be incredibly tough. From dealing with doubters and denial, discrimination, misunderstanding, thoughtlessness, rejection, loneliness, fear, self-doubt and all the other rigours of long term chronic illness, this post takes a look at it all.

Fibromyalgia as an expression of “stuckness”

When an emotion gets buried in the body, what does it look like years later and are there links to chronic health conditions? How are unidentiified autism or ADHD linked to fibromyalgia and chronic fatigue, as is emerging? What is our body trying to tell us when it seems so "stuck" and is this a clue to our recovery?

A place for strain/counterstrain therapy in EDS hypermobility

In Ehlers Danlos, muscle spasm and rigidity is a compensatory measure for hypermobility, to stabilise the joint. As such, it stems from a different cause to what is typical (not tightness as for most people but a response from the central and peripheral nervous system) and thus requires a different approach, but what? Exploring the possibilities via therapy and listening to your own body as a primary approach.