hEDS and “energy flu”

I’ve been calling it “energy flu” for decades but what I mean by this is when the environment changes and I sense it through every tissue and fibre of my hypermobile body and it affects me…affects literally all of me, like I’ve walked in or out of a pressure chamber and nothing is quite normal whilst I adjust. Talking about hEDS in relation to an increased sensitivity to environmental shifts, how this impacts sensations, symptom load such as pain and dysautonomias, functional ability, executive function and more and things you could possibly consider as a better way of managing these episodes.

The sustained traumatising effect of trying to lead a “normal” sensory life with a neurodivergent nervous system

I do believe that constantly drip-fed overstimulation traumatises those of us without appropriate filters and barriers to cope with sensory experiences that are not designed to accommodate neurodivergence and in such a way that compounds with time, affecting us in ways that other people can’t even begin to imagine as they’re simply not having the same experience as us. Quite literally, the only thing we have in common with the majority of people who are apparently dealing with the exact same situations as us is that we’re physically in the same space…because the way we experience that space is a whole other matter. We can try to explain (with variable degrees of success) but we can never take them there with us so they understand! Until we give this effect the most appropriate name, trauma, we don’t deal with it appropriately either…because we just keep on sucking it up and wondering why we struggle and burn out so often and in so many apparently unusual or creative ways. Yet in the case of any other trauma we would work much harder to notice when it was happening, to put a stop to it and heal from it…but how do you heal from something that is relentless and ongoing, which you have to expose yourself to in order to be part of anything in life that has something to do with being around other people or in the world as it has been made to be, which is highly overstimulating and often too much for our differently wired systems?

Fibromyalgia in review

There is no one approach to fibromyalgia, it has to be a multi-system approach but this recap of what I know, with the help of a webinar I watched yesterday, has been a really big help in summarising all the key points and gaining some real clarity. Also for checking in with any approaches that need a little boosting and I also hope it might help anyone else who could do with a review.

Time for me!

When one small thing breaks the camel's back, its usually time to stop and pay full attention. So often, its a clue to how we have been giving ourselves to everything, and everyone, else and not to our own needs...a key trait to notice when we have chronic conditions (because there seems to be a link)...

Electrosensitivity and the Highly Sensitive Person

Being an HSP isn't a flaw but an evolutionary advantage, as has been amply demonstrated by science and history. We were always meant to be the natural outliers of the community, by design, so that we could be the first to notice important things that others miss, picking up envornmental cues and alerting others to any danger that we sensed coming our way. But what happens when our alarms start to go off all the time and when or how do we get a respite? How does this relate to the modern age phenomenon of chronic pain, fatigue and systemic meltdown?

Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)

Its been a while since I've written for this blog because I've been deeply into the process of following the Gupta Program limbic retraining since February and wanted to give my all to that...ongoing. I've seen massive improvements in many area of my health management, far too many and particular to me to itemise and, … Continue reading Is limbic retraining any use for structural chronic pain such as EDS? (Spoiler: yes!)