Hypermobile Ehlers Danlos Syndrome

The October Slide is real

~ Helen White ~ Leave a comment

I’ve been noticing the October slide into worse chronic health symptoms phenomenon for years (as reflected by countless posts alluding to it ever since I first started writing here) but, at last, I’m hearing tons of other people talking about, or maybe my ears are just pricked-up looking for more answers as ever, galling as it is to see a summer’s worth of steady health improvements set back like this once again. So what is it, why does it happen and what can be done to get through this heinously challenging time for some of us?

hEDS and HSD – “complex syndromes”

~ Helen White ~ Leave a comment

A groundbreaking new study has highlighted the multi-systemic burden of living with either hEDS or HSD along with the considerable financial and circumstantial costs associated with managing these conditions and seeking appropriate medical attention in a system that still holds an extremely outdated, shortsighted and even biased concept of how these conditions and their symptoms manifest in people's lived experiences. Here's hoping this new study paves the way towards a complete overhaul of the diagnostic process and a much more accessible "joined up" approach to symptom management.

Missed signs of Ehlers Danlos during childhood

~ Helen White ~ Leave a comment

With EDS and HSD Awareness Month upon us, it feels like a fitting time to share one or two posts written from my personal experience of having lived with Ehlers Danlos Syndrome all my life yet not always having known it because other people around me also didn’t have a clue. You could ask, well … Continue reading Missed signs of Ehlers Danlos during childhood