Learning to live with any of the syndromes (CFS, POTs, fibro, CSS, EDS, MCAS, to name but a few) can be incredibly tough. From dealing with doubters and denial, discrimination, misunderstanding, thoughtlessness, rejection, loneliness, fear, self-doubt and all the other rigours of long term chronic illness, this post takes a look at it all.
Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once
It can feel like a very long walk down a dimly lit corridor when you are trying to fathom your way out of a long running health condition such as fibromyalgia, as I expect others on the journey could probably relate to. From time to time, if you’re fortunate and diligent enough in pursuit of … Continue reading Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once