A lifetime fuelled by pain and frustration: handling the emotional fallout of long-term undiagnosed autism

A combination of having a blind spot when it comes to your own emotions (alexithymia) and a lifetime of fear around unleashing strong emotions.not to mention the stockpile of anger, frustration and trauma from all the difficult years before diagnosis, can conspire to push strong emotions deep into the body. Exploring how autistic challenges such as these could manifest as chronic illness and especially chronic pain.

Two horse buggy: learning to drive the double horse team of autism and ADHD

Burnout or even trauma can be a very real risk if you are autistic and find social engagement really challenging or have poor track record; however, it can also be a highly positive "stim" from which you may get far more positive effects than you know. How to reconcile this two pony team, and the completely different directions they pull in, can be a lifelong conundrum if you happen to be both autistic and ADHD but getting it right can potentially lead to far better health and a vastly improved quality of life.

“Let me share an example from my life” (neurodivergence in the context of relating)

Nurodivergents and neurotypicals are sometimes poles apart in their communication styles but imagine if we could just try to meet on some common ground whilst accepting those differences (that last part is key…nobody should be required to change themselves). Isn’t this exactly where the best hopes of humanity lie, as in, meeting across the so-called impossible divide?

Random acts of kindness: Speaking in gestures, an autistic way of communicating

A non-verbal communication style might not mean the complete absence of speech but that it is not, by any means, the default approach to conducting relationships and many people on the spctrum use actions and gesture, as well as writen communications, to convey most of what they really have to say to others. When it comes to kindly gestures, if there is a need and we can somehow fill it because we have the means or can find the missing puzzle piece, we simply bring those two things together because its obvious and we do this because we are innately well-meaning and without guile. The fact we treat it somewhat like putting a male plug with a female socket does not take the humanity out of it; as in, our logical approach does not negate the deep and often hard-for-us-to-express feelings that bottle-up deep inside when our efforts at communication go unnoticed, unwanted or "unheard". Loneliness, wounding and unfulfillment regarding friendships is a very big factor in autism, perhaps even more so for adult females on the spectrum and the wound can run very deep indeed, year on year, when our unique offerings to the world are treated as no more than the transactional deeds of neurotypicality when, really, we are speaking outloud and as eloquently as we can via them (or, at least, the best way we know how).

Harmony

...for those of us who are especially sensitive, though the idea of being "out" amongst a load of other people in a room together is quite abhorrent as an idea, the reality is we could benefit from this more than most...because its the missing link to our health, we have to dare to go there to break the stalemate of our stuckness, and choir is an appropriate way in as it puts us where harmony is the very name of the game.

Are you on the autism spectrum?

I’m sharing these thoughts because I’ve been swept over by a sort of epiphany that I am on the autistic spectrum and I'm by far from the only one discovering this in my 50s! The more I delve, the more I (a) discover anecdotes that sound like myself now or as a child/young adult (people … Continue reading Are you on the autism spectrum?

Who knows your pain

When we are in chronic pain, or even an episode of acute pain that seems to go on and on, who do we share that with, can we even expect to share and does it make it better or worse to convey to loved ones what we are going through? Yet, do we need that outlet of saying it like it is and not feeling so isolated in our experience and, if so, where do we get that from, without stirring up the pot to make ourselves feel all the more defeated from over-talking it. This conundrum is familiar territory to anyone who lives with pain, chronic illness, even the disillusionment of daily chronic fatigue. Sharing some home truths, perhaps some helpful perspectives, from my own experience of this highly emotive topic.

(The importance of) saying it like it is

I used to think that tipping the balance of my recovery involved staying unfailingly on the positive side of a tug-o-war that had me desperately pulling every experience to the 'positive side', the most 'optimistic' interpretation, giving everything the 'happy' spin. All that did was give me rope burn. Lately, I've gone into myself and said very little rather than admit how much I was suffering. When we mute ourselves in our times of need, this leads to a sort of malignancy where we turn everything inwards and gnaw away at our own centre, our very life-source. It happens for a variety of reasons, perhaps to protect ourselves or others from hearing 'our stuff' - which amounts to an almighty blockage on our ability to self-express, which is the crucial first stage of any sustained healing process. There is no place for pretence or politeness where avoiding malignancy is concerned, we all deserve to be heard - both when things are going great (yay, lets celebrate) and when they have become an almighty struggle. Enacting this process is - quite simply - an example of unconditional love in action; delivered as love and honour of self and in the form of the reciprocated love of anyone who takes the time to hear you when you are in your darkest place. Let it all out and love yourself, love yourself and love yourself a little more for all you have been through and let that knowing empower you as you realise you will never abandon yourself, come what will. This exercise in 'saying it like it is' was a powerful one for me, it brought a lot of positives to the surface and turned into a ceremony of honouring, releasing and healing some very deep trauma from my cells - the process of which I share in this week's blog.