Syndromes

Suddenly, people like me, on the long-haul to solo self-recovery from "mystery" illnesses find we are not all alone in here. Amidst the sea of people embarking on the bewildering covid long-haul recovery path, I'm hearing such a lot of talk about syndromes that are painfully familiar turf. So, what would I share with anyone at the start of such a journey and what does (or will) the coincidence potentially tell us about chronic fatigue, fibromyalgia, PoTs, MCAS and a whole load of other overlapping syndromes? Here begins the mass learning curve!

Moving more, not less

My physical foibles (labelled such things as EDS and chronic pain) don't render me unentitled to a gloriously reimagined health future but even more prone to be open minded and eager enough to embark on the journey because there are no rules where I dwell, it is all a giant leap in the dark so why not make it a leap towards what I prefer to envision and thus create. The first step is to make friends with movement...