Here's my update, after almost 6 months of following a mega-dose thiamine (B1) protocol, and its good news so far...
High-dose thiamine (B1) – an update
PoTS
The exercise paradox in recovery from chronic conditions
It may seem like a reasonable suggestion, that you increase your exercise to recover from chronic illnesses such as long covid or CFS...or is it really a terrible mistake that could make things much worse? Exploring the paradoxical role of exercise for recovery from these highly contrary conditions.
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Saved by qigong, again
If only I could convince everyone that spends their days tied to a sofa, who feels trapped by ever-worsening symptoms of some chronic illness, or state of overwhelmment, or other to give qigong a go…because I would dearly love them to reap all the benefits that I have this year. Living with chronic conditions can feel like a never ending series of mountains you have to climb but with qigong in my arsenal I seem to triumph more often than not and my mornings have become "what do I want to do today?" more so than"what do I have to deal with next?".
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Hypermobility (also, PoTs, chronic pain and fatigue) as exaggerated fight, flight or freeze reaction
Its just so interesting to try-on the all-too-familiar chronic health "flare-up" scenario through the eyes of Sensory Defensive Disorder rather than through the more blinkered perspectives of a particular conditions such as fibromyalgia, hypermobility or chronic fatigue sydrome. It certainly helps to explain how these flare-ups can come on in the most arbitrary manner with no obvious trigger. What if a high degree of sensory defensiveness underlies it all, in which case you can tackle the SD as a primary factor?
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Hypermobility and the moon (and other natural cycles)
When we notice how our bodies work so closely (as does eveything in nature) with the cycles of waxing and waning, we gain the tremendous power that comes from accepting what is and ceasing to resist the natural rhythms that can also be our best source of strength when we harness them for our recovery.
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Living with PoTS and dysautonomia
Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?
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Chronic health journey recap: hardships, connections and gifts
Illnesses stop us in our tracks and call time on the old ways of being that no longer fit who we are. Often, they are an invitation to look deep into the corners of our life and do some real work…the kind of work that brings us into love and acceptance of who we really are, beyond the stories and expectations that get overlayered by our crazy and demanding lives. Often, there is an opportunity to be found in our own disarray and, once we find it there, it doesn’t stop giving…not ever, for the rest of our lives.
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Seasonal health turned into “season of growth”
Do you have marked seasonal difference in your health symptoms? Many people do! However, when we learn to accept them, know them and work with them we get to find a new kind of equilibrium in spite of them, and that brings its own seasonal gifts.
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Considering a mega-dose B1 approach to reversing chronic conditions
The effects of vitamin B1 (thiamine) deficiency are widespread, sometimes bizarre, much-more common in the western world than we think...and look a lot like certain chronic conditions we all know so well in this space. So, what does saturating the body with high dose B1 do? I'm about to find out...
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Time for me!
When one small thing breaks the camel's back, its usually time to stop and pay full attention. So often, its a clue to how we have been giving ourselves to everything, and everyone, else and not to our own needs...a key trait to notice when we have chronic conditions (because there seems to be a link)...
Living whole 