Mechanism of a flare-up – how understanding can lead to relief

Beaking down "what happens" when you flare-up and coming to understand why your body migth tend to resort to these responses to certain triggers, usually in an effort to help you (an understanding that can occur to you when you slow down enough to listen, instead of letting fear lead the research party) can make for a big breakthrough in managing these dips...

Knowing your own limitations is the direct route to your superpowers

Knowing what your weaknesses are and, importantly, owning them can be the very first step to making your "problems" much simpler to navigate, avoiding the endless re-runs of such familiar-old challenges and then claiming all those hidden strengths that are just waiting for you to notice them beyond the smokescreen of struggle...

Getting down to the root of my fibromyalgia

If recovery from chronic illness is like a long-running detective story, with us as its protagonist, this year has felt like one of those chapters that make sense of quite a few things in a series of "a-ha" moments. And though what I have learned in quick succession may very-well have overwhelmed me, it has also enlightened me as in TO LIGHT ME UP with a new degree of self-appreciation and awareness, also clarity as to how certain root circumstances click together to make chronic illness what it is.

Syndromes

Suddenly, people like me, on the long-haul to solo self-recovery from "mystery" illnesses find we are not all alone in here. Amidst the sea of people embarking on the bewildering covid long-haul recovery path, I'm hearing such a lot of talk about syndromes that are painfully familiar turf. So, what would I share with anyone at the start of such a journey and what does (or will) the coincidence potentially tell us about chronic fatigue, fibromyalgia, PoTs, MCAS and a whole load of other overlapping syndromes? Here begins the mass learning curve!

Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once

It can feel like a very long walk down a dimly lit corridor when you are trying to fathom your way out of a long running health condition such as fibromyalgia, as I expect others on the journey could probably relate to. From time to time, if you’re fortunate and diligent enough in pursuit of … Continue reading Ehlers-Danlos, POTS and Asperger’s…many lightbulbs go on at once