How do you measure who you are, what makes you feel core-strong regardless of what else is going on, and how does this manifest in your physical health? Boy this feels like such a big post, too much in it to summarise so dive in if you are prepared to ask these questions with me.
Knowing what your weaknesses are and, importantly, owning them can be the very first step to making your "problems" much simpler to navigate, avoiding the endless re-runs of such familiar-old challenges and then claiming all those hidden strengths that are just waiting for you to notice them beyond the smokescreen of struggle...
"Without pain, I would be a neurodiverse hypermobile person (which is both to think and move outside the box…) with exceptional skills of insight and sensitivity, who knows how she likes to be and work and with whom and how to follow her best, most balanced, guidance through life." Excavating the gifts of diversity beyond a paradigm of struggle.
What if none of our traits mean we are "broken" but, rather, that we have been living to the wrong paradigm? An exploratory look at the link between my own hypermobility and neurodiverse traits and an innate need for more movement and freedom of expression.
Suddenly, people like me, on the long-haul to solo self-recovery from "mystery" illnesses find we are not all alone in here. Amidst the sea of people embarking on the bewildering covid long-haul recovery path, I'm hearing such a lot of talk about syndromes that are painfully familiar turf. So, what would I share with anyone at the start of such a journey and what does (or will) the coincidence potentially tell us about chronic fatigue, fibromyalgia, PoTs, MCAS and a whole load of other overlapping syndromes? Here begins the mass learning curve!
Choosing the path that is right for you is also an inside job, though it's easier to get swept along conventional routes. Some personal thoughts on why I chose my healing route...
My physical foibles (labelled such things as EDS and chronic pain) don't render me unentitled to a gloriously reimagined health future but even more prone to be open minded and eager enough to embark on the journey because there are no rules where I dwell, it is all a giant leap in the dark so why not make it a leap towards what I prefer to envision and thus create. The first step is to make friends with movement...
Our personal version of alchemy is so often performed without even thinking about it, when lost in those tasks that take us deep into ourselves, into our innate knowing and our joy. So often, we learn to treat such activities as self-indulgent, pointless or plain weird and yet, the paradox is, they often hold he key to our deepest transformation...in other words, they are exactly what we need to be doing right now.
At the risk of this sounding like an over generalisation, it seems to me that neurotypical people mostly take in their impressions of the world through their heads and their fingertips whereas, as someone with Asperger’s (and I have read about this trait a lot in Aspie accounts), I seem to take in my impressions … Continue reading Impressionable: a breakthrough in working with super-sensitivity
When we are in chronic pain, or even an episode of acute pain that seems to go on and on, who do we share that with, can we even expect to share and does it make it better or worse to convey to loved ones what we are going through? Yet, do we need that outlet of saying it like it is and not feeling so isolated in our experience and, if so, where do we get that from, without stirring up the pot to make ourselves feel all the more defeated from over-talking it. This conundrum is familiar territory to anyone who lives with pain, chronic illness, even the disillusionment of daily chronic fatigue. Sharing some home truths, perhaps some helpful perspectives, from my own experience of this highly emotive topic.
Living whole 