When the dopamine wears off…avoiding the next crash

Does dopamine really mitigate pain? If so, what part does dopamine shortfall play in chronic pain conditions such as fibromylagia, neuralgia and in the delayed and often exaggerated post exertional responses of ME/CFS? How does this factor overlap with other dopamine deficient conditions such as ADHD and parkinsons and how can the knowledge of it be used to hack a better life in chronic health cases where dopamine levels play such an intrinsic part?

Celebrating your wins

The mindset of "chronic" can close our minds to all the small and medium sized wins, the subtle but indisputable improvements, the learning curves and fresh starts. Its just so important to take pause to appreciate all the subtle ways that things have improved, been overcome or even just taught us beneficial things about ourselves and life in general, often with such positive outcomes when it comes to increased confidence, optimism, sense of progression and even joie de vivre.

Cervical instability at the core of fibromyalgia?

Exploring why it may be worth considering cervical instability as a root cause of fibromyalgia with some real food for thought on how the wide-ranging symptoms of this one single, often hard to notice, factor can really start to add up.

Hypermobility is a spectrum disorder: its not all about subluxations!

News flash: hypermobility is not all about joint subluxations and is not as rare as they say, especially for women, but is actually a spectrum condition, meaning your most bewildering symptoms might be on that spectrum. You need to cease feeling like such an imposter in order to start looking hypermobility right in the eye because only then can you start to tackle it as a possible source of chronic pain, dysautonomia, GI issues and a whole host of other health mysteries.

On oxalates, emotions, self-protection, autism and releasing: a hypothesis

Exploring the idea that certain chronically painful bodies have formed the habit of storing oxalates (toxic anti-nutrients) from common food sources in order to protect us when, really, this only does great harm...and how to get out of the subconscious mindset of vulnerability in order to heal.

Coping with sadness for what has been lost through chronic health

There comes a time, in chronic illness, where you have to address a profound need to be left alone, to carve your own space, time to put down all attempt at social skills to go mute and self-focused, devoid of all expectations from others to do or react or say the right things and just "be" in the dark void with whatever it is that is happening to you. There has to be time and space for you to pull into yourself, to lick your own wounds and to grieve your own losses which, though less overt than an actual "death", are a kind of bereavement all of their own...a deep sadness for the health you once had, the person you used to be, the hopes you once nurtured. This, like any bereavement, takes time and space and solitude enough to process. My craving for solitude is extremely high right now, perhaps no different to how any wounded or traumatised mammal will withdraw to its den in order to attempt to self-regulate its highly overstimulated nervous system in a way that can only ever be done by curling up, alone. No amount of kind gestures or people wanting to fuss or help out can play substitute for this need to be alone and look our current state in the eyes, to intuit what we most need and to search for the means to initiate the body's own healing process, which is not something you "do" but, instead, patiently wait for with whatever small iota of faith that you have left.

Fibromyalgia in review

There is no one approach to fibromyalgia, it has to be a multi-system approach but this recap of what I know, with the help of a webinar I watched yesterday, has been a really big help in summarising all the key points and gaining some real clarity. Also for checking in with any approaches that need a little boosting and I also hope it might help anyone else who could do with a review.

Living with syndromes

Learning to live with any of the syndromes (CFS, POTs, fibro, CSS, EDS, MCAS, to name but a few) can be incredibly tough. From dealing with doubters and denial, discrimination, misunderstanding, thoughtlessness, rejection, loneliness, fear, self-doubt and all the other rigours of long term chronic illness, this post takes a look at it all.