masking

Internalised ableism meets autistic burnout

~ Helen White ~ Leave a comment

Neurotypical expectations tend to come at all of us from every imaginable angle when we are autistic but, when we also internalise them and bounce them back at ourselves from the inside, the effect can be toxic because there is literally no getting away from that ableist voice now; its there night and day. Until I am prepared to notice that the voice saying these things is not mine and stand up to it, and to anyone else having unrealistic expectations of me given my autistic take on certain situations that bother me more than they can imagine, I risk repeatedly throwing myself back into a burnout status because I will never allow myself to fully recover. Every time anything that looks like a “normal” or so called “reasonable” expectation comes my way, I will simply roll over and surrender to whatever is expected of me, abandoning my desperate need to stop doing these things or putting myself in the way of highly stimulating and demanding situations and exposures in the name of trying not to rock the boat or stand out as different.

The positives of finding out you are autistic (if you are)

~ Helen White ~ 2 Comments

Before you realise you are autistic (if you are), all you tend to know is the outline of your autistic self, as in, the shape that is left where you don’t fit in with other people’s experiences. It’s a bit like drawing a portrait of someone by filling in the background and leaving a space where the person is standing; what they call a negative space composition, in art terms. You get to know what you aren’t…but not what you are. Such an approach tells you a lot about all the misfitting bits but nothing much about yourself and that, in itself, can be a source of ongoing trauma because it can leave you feeling like a blank. Finding out you are autistic begins a process of filling in all the blanks and getting to know who you actually are.

The effect of chronic stress and early-life trauma responses on long term health

~ Helen White ~ Leave a comment

Looking at what we already know about the effect of chronic unaddressed toxic stress and early life trauma-responses, specifically from the perspective of neurodivergence, and its possible link to chronic health issues.

“You’re looking really well”: The curse of the invisible disability

~ Helen White ~ 2 Comments

The way human society is devised, the very foundation stones of its connectivity networks, is based on us all having relatable, sharable situations and people being able to recognise when another person is in strife. When you have chronic conditions that not only isolate you from other people due to an equally chronic lack of spoons, also causing you to be misunderstood by other people (as people tend to assume you are making up lame excuses when they can’t see the energy deficits you are having to work with!) then having the additional pitfall of nobody being able to recognise that you are ill, because your disabilities are hidden from sight, even when you finally come out of the woodwork, is the final sting in the tail.

Exploring the link between hypermobility and neurodiversity

~ Helen White ~ Leave a comment

The very fact of constantly having to adapt, to meet alien-feeling situations on their terms, when others just slide into circumstances like a hand into a well-fitting glove, exhausts systemically when we don’t even notice how much we are having to do it, how much we are constantly having to bridge the gap between what is and how we are. This may have been damaging our health for years, as surely as long term smoking or heavy drinking, only we didn’t realise it until it was too late to avoid the consequences to our health. This is why I am passionate about helping other high adapters, women especially, to realise, embrace and advocate for their neurodiversity early on in life. It seems to me, autistic women often have a sort of hypermobility of a more subtle kind; one that enables them to become whatever people expect of them…but at what cost.

When stress and excitement are much the same thing: mechanism of a shutdown

~ Helen White ~ 1 Comment

I simply can’t be this finely tuned autistic person and not have a reboot setting to clear static off the lines. Exploring the anatomy of shutdown, how it is received and why it might be necessary.

Who I am, how I choose to live; an autistic reappraisal, one year in

~ Helen White ~ 4 Comments

Diagnosing as autistic is just the very first step. Reappraising you choices, what truly motivates you, how and when to engage with others, how much of yourself you have been giving up to conform and what you are going to have to let go of to become more authentically yourself...these are the next steps in the ongoing journey of overhauling your autistic life.

High-functioning

~ Helen White ~ 2 Comments

High-functioning autism is often missed or misunderstood, not least because those with it so often overcompensate for their traits. The term has also been phased out in "official" quarters and yet it still applies to just so many people, not least those who have reached midlife undiagnosed (and especially women). Tackling this controversial topic on behalf of those of us who still fall between the cracks, with a link to some useful resources to help you find your way.