Perhaps more than any other aspect of chronic illness I have ever had to deal with, including chronic unrelenting pain, dysautonomia has the ability to throw your entire life into disarray, permeating every single aspect of your life in ways that can be as invisible to the casual bystander as they are devastating. Is there a bright side, things we can learn, ways of living with it better?
Bear this in mind when you consider even the best-intentioned elimination diet. Cultivating joy is central to everything if we are to thrive in life at all…and its an insider job. Take away your entitlement to prepare, look forward to and then relish, without undue fear, some of the most natural and delicious, healthy, food sources that others take for granted and you are quickly placed on a road to isolation, disillusionment and dispair. You begin to wonder what you have done to deserve such a thing…and this is certainly no route to healing!
Are sensory-sensitivities in autism the same as being a Highly Sensitive Person and what can you do, in either case, when your sensory experiences seem to play on loop, especially if they trigger physical symptoms? Sharing some insights as someone with both traits and ways I am starting to rewire my own highly sensitive responses.
I have a recovery plan and it honestly feels great (enough said)...read on to find out what!
My physical foibles (labelled such things as EDS and chronic pain) don't render me unentitled to a gloriously reimagined health future but even more prone to be open minded and eager enough to embark on the journey because there are no rules where I dwell, it is all a giant leap in the dark so why not make it a leap towards what I prefer to envision and thus create. The first step is to make friends with movement...
Sometimes we all need a little faith in ourselves, and the gentle push of momentum, to realise we can be our own rescue party. Exploring the extraordinary power of momentum in the journey of self-healing and becoming more whole.
When we are in chronic pain, or even an episode of acute pain that seems to go on and on, who do we share that with, can we even expect to share and does it make it better or worse to convey to loved ones what we are going through? Yet, do we need that outlet of saying it like it is and not feeling so isolated in our experience and, if so, where do we get that from, without stirring up the pot to make ourselves feel all the more defeated from over-talking it. This conundrum is familiar territory to anyone who lives with pain, chronic illness, even the disillusionment of daily chronic fatigue. Sharing some home truths, perhaps some helpful perspectives, from my own experience of this highly emotive topic.
Dr Elaine Aron’s work on this topic has been a life-changer for so many people with high-sensitivity since the phrase was not even coined until she came along and gave it this label. Her book, film and website resources are some of the most useful tools I have ever come across and she is cited by pretty-much everyone who speaks out about high sensitivity which, thanks to her, people now do; quite unheard of a couple of decades ago. More and more, high-sensitivity has become a buzz-word and not because its trendy to jump onto its bandwagon but because many of us had very little concept of what made us so different until this point; which allowed everyone else’s opinion of us, that we are “wierd”, “weak”, “neurotic” highly-strung” and so on, to stick. With more interest garnered in it than ever, it's now been shown by studies to be a genetic trait; something a fifth of us are born with…so, not an illness, timidness, weirdness, personality flaw, mental health issue, handicap or lack of backbone (as so often referred to in our families, schools and workplaces). When we turn this around to see High Sensitivity and its traits as a bundle of gifts, we start to live much closer to our personal blueprint.
Its not a level playing field; the way we are attached to our primary caregiver as a child can have profound and long-lasting effects on our immunity and health patterns for the rest of our life, which could explain why some people are much more prone to chronic health issues and other anomolies, even more bizarre sensitivities, than others. Attachment issues have been especially associated with chronic pain, how we experience and handle that pain and how effective we are at seeking help when we need it. This is a deep plunge into the new science around this topic as well as an anecdotally personal look at how to go deeply into this opportunity, when triggered, in order to offer yourself all the attentivenes and tender love you may have lacked in infanthood in order to heal.
Though many people look to the expertise of others to heal them, we are all fully equipped to work with the quantum level of life, where every moment is, as it were, a choice between particle or wave; substance or frequency and we get to choose outcome. A nano-second’s choice, at any level of life … Continue reading The frequency of healing